Welcome.

Roger.

Hi Hilary , nice to meet you what part of NZ do you live. I have had Alopecia for 40yrs and my girls have had AA 1 for 18 mths lucky her patches have grown back she is 21 and my younger daughter has had AA for 10yrs and she is 13 and has just shaved of what hair she had left. She has been wearing a scarf to school but hates it, I think she will end up happy to wear nothing. I have always worn a wig but when I lost my hair people warn't as accepting of difference, but i can assure you I am happy bald and wouldn't change anything.

We live in SouthAuckland and pale faced kiwis ha! ha!, You sound like you are very comfortable with no hair good on ya. I know what its like wondering who else is out there with no hair and once you get talking to people it seems everyone knows someone that has AA. At the moment everyone thinks Sof has cancer and she gets tired of telling everyone that she doesn't and then they don,t quiet understand. Lucky she has cool friends that don't care, thing is it all new to her at the moment and all about accepting who she is.

Na Sof and I don't do any treatment the best treatment is acceptance but my eldest daughter Sam had steriod injections in the patch of hair loss she had at the back of her head, 30 injections in one patch awh. But she was devistated at having a patch of hair missing. I am not saying it worked because her hair may have grown back anyway but it made her feel she was doing something and it has just grown back now.

Hi Hilary,

Welcome to Alopecia World

Cheryl

Whats up over there in NZ? =)

No prob :-) Its always encouraging to meet someone who can embrace Alopecia the way you have! Hope you're having a great day! :-)

Hi Hilary thanks for adding us. Where abouts in NZ are you.....Nicole is 13 and has had alopecia since she was 8. Look forward to getting to know you.

Sharon

Hello and welcome, Hilary!
How are you and your family doing today?
LeslieAnn

Hi! thanks for adding me :-) Love your photos and I salute you for being brave and embracing who you are. You are stunning and I admire you. xoxo

Hi,

Yes i didnt fit in when i was younger, i was 7 when i first got it and young kids dont understand....by the time i was 13 i got along with everyone just fine. Modelling really helped with my confidence. glad your friends are good to you about it!

Hey, Thanks for your comment :)
Actually every since I joined this group, I've been feeling so good about myself and I really don't care if I am bold or not. I have other things to worry about than my hair really. Hope you enjoy the group :)

Thank you Hilary. I am not actually sick anymore. I have been better for almost three years. So I think that sort of makes it harder- the fact that I am not sick and I still have no hair. Thank you for your comment!

I think you are awesome. Being rough around the edges is a good thing, can be a bad thing sometimes, just need to know when to use it and when to not. I think the urine thing is a GREAT idea. Please give me some details so I can try it. Keep your chin up. I like who you are!

hola como'ta stay strong mami

I know how it feel ma, i recently lost my cousin, some people only see who we are on the outside not for who we are on the inside. So Stay strong nena Y Dios Te Bendiga (God Bless You).

gracias mami, really that means alot im just here to join da club, the club against silly people out there u know

Hilary,
If you are talking about their understanding the alopecia and emotions connected, have mum and sis go to www.naaf.org and read up. You can also print out any internet info on alopecia you find and hand it to them quietly every time they tease. Show the Kayla Martell videos on YouTube. If they still tease, maybe it is time to hang out elsewhere or MOVE!

As to the boyfriend thing you bring up often, first of all...don't count out guys with alopecia, because they are just as human as you, and may actually have MORE love saved up to give. They may also be more honest and humble. Next, what about dressing to show your curves and feminine features more? When I had alopecia at 17, my mom suggested make-up and contacts, and I got mad at her. Eventually, however, I gave in, and I did end up looking more "feminine," even at 5'9". My junior and senior year photos in the yearbooks and in people's albums showed a marked improvement. Now that I am 57 and photos resurfaced for the 40-year reunion, I am glad I listened to my mother. What have you got to lose? If you try the head coverings, jewelry, make-up and clothing changes, you might GAIN some attention to you as a person. After attracting interested FRIENDS, one of those friends who likes your talk and personality...or feminine ways...may just end up a boyfriend.
A Teacher and Mom

I never met a guy with alopicia and I tell them I have a wig after a while. They say oh I thought you were indian b/c I get the best wigs made with silk cap and silicone around it. I now also have full silcone so it looks real and you dont see different in hair textures. I recomend wigs. I aske d this guy who I would never date anyway if he would date a bald girl he said if she wore a wig all the time. I was like next. he is crazy. I want one I can wear my bald head around. b/c I already rejected him so I think his alopicia comment about he would date a bald girl if she wore wigs around the house is not well thought out b/c he was still after me after seeing my wigs and me telling him abut my hair as a way to turn him off. in fact I never been successful in turning off a guy based on reveling my scalp issue. They eventually come to terms with it and they start to like all my different wig looks. I try to mimivc beyance and tyra looks with my wigs. in my mind I'm like the celebrities. glamorous with my diva wigs! LOL!