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Lisa-Lynn Marini

Female

Oshawa

Canada

Profile Information:

Relationship Status:: Married
About Me:: Hi,
I'm new to this so i'll do the best here,
I'm a mom of 3 beautiful children ages 14,11,8
I've been married for 14 years ro a wonderful loving husband .
I've recently been told that I have alopecia areata, which really upset me and i'm doing the best I can to cope with it howevr its so very hard, I lok forward to chatting with some of you here.
Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older

Comment Wall:

Michelle L

Welcome Lisa - I hope you find the support here that you need to cope with this. I have found this site invaluable and it has really set my head in the right place. xoxo I look forward to getting to know you.

May 26, 2010
Michelle L

Hi Lisa
I also have 3 kids - mine are 7,5 and nearly 2. I think we're so lucky to have such wonderful support on this somewhat scary journey. Please feel free to contact me if you want to talk. I am so happy to help if I can because I have found so many beautiful people here who are so helpful and have really made me see things from a new, positive angle. xoxo

May 26, 2010
LeslieAnn Butler

Hello and welcome, Lisa!
How are you doing today? Let me know if I can help.
LeslieAnn

May 26, 2010
Scaredandhopeful

Hi there,
Thanks for the add. It's the most shit situation but somewhere along the line you begin to realise that perhaps it's not the end of the world. I'm far from there, but getting more hopeful every day
I hope you have a peaceful day in your mind and your heart today :)

May 26, 2010
LeslieAnn Butler

Great, let me know how you like the book! You can get it on Amazon.
I know, alopecia can be really tough. Are you wearing a wig? If you get something that looks natural, you won't have to worry about people talking behind your back...

May 27, 2010
Tiffany P

Welcome to AW. hair loss os a hard thing to go thru but we will make it thru :o) Its normal to have your ups and downs no matter how positive a person you are. have a great weekend :o)

May 27, 2010
Dana Kozlowski

Lisa,

Welcome to the best support group ever! I am fairly new to alopecia and without having the wonderful world of support I think I would be severly depressed. The stories on here are so inspiring and positive. My outlook has changed so much and I am thankful for wonderful friends, family and people I met here. You will get thought this! It is normal to be sad..........

May 28, 2010
Chris Jeffer

Hi Lisa,
Welcome to your new life- some of it you are really going to hate and a lot of it is a journey into finding out about who you really are and what you are made of.

I too have three kids - 14, 12, 10 and they have seen me laugh and cry through my trials with alopecia, but the one thing that this condition has made me do is accept myself the way I am. It has also pushed me to be strong so I can show my kids how to deal with adversity in their lives. Alopecia has been a big teacher for me - helped me formulate stronger values and get my priorities straight.

If ever you want to chat, unload, whatever, feel free to contact me. We are all in this together!

May 31, 2010
Dotty

Hello Lisa-Lynn,
Welcome to the International Alopecia Day group. We are delighted that you have joined and hope you will look into having an event in your area to celebrate the day. Keep us updated as you progress. Thanx again.
Love and Hugs,
Dotty

Jun 1, 2010
Michelle L

Hi Lisa-Lynn
She put pics of her hair on YOUR facebook page? Hmmmmm. Maybe she isn't so clueless after all. Did she tag you in them? How did she get them there? NOW I am angry on your behalf!! (I think I just tipped from sunny and positive to bitter and twisted...*lol*)

I would talk to her if I were you. You may not like what you hear, but at least you'll know one way or another what her motives were. Maybe, just maybe it was unintentional.

Hope you have a happy day, my friend.
xoxo
Mish

Jun 1, 2010
soniamarry

May this red ribbon remind you of your beauty within, hope and courage every time you look at it!

Jun 1, 2010
Sanah Jivani

Thanks! I really need an occaisonal reminder that beauty is something that grows on the inside.. cause like you, i am very moody at times with my hairloss and i forget what being beautiful is all about.
The only reason i still believe in myself are reminders like these and support from family and friends! It means a lot to me that you would leave me a comment on my profile, and it really did make my day! Thanks!
And i know it can be challenging, but the most important thing is keeping hope. So never give up and keep hope forever!! :) and just know you always have support from family and friends!

Jun 5, 2010
Norm

Hi there Kiddo, and Big Ta for the friend add! It's great to see the changes in your posts, from "depressed and desperate" to "wary but hopeful", and even, dare I say it, "much happier"? :)
Hang in there, keep talking, and one day, while you may not be ecstatic about alopecia, you won't care half as much.... betcha!
Hugs - Norm xx

Jun 6, 2010
lucey smith

Thankyou for tht comment made me smile (:
ive got to go see a skin doctor about it all and hopefully that will make me better aswel
it great talkin to you (: x

Jun 19, 2010
Chris Jeffer

Hi Lisa-Lynn,

I write a blog on alopecia and while I was doing some research today, I found this on YouTube. I have read Dr. Lipton's book and many of Wayne Dyer's books and really believe that we can heal from anything. It is through our beliefs and perceptions (not our genetic composition) that healing occurs, and for some reason as I was reading this, I thought of you. I hope this this will give you hope as much as it has given me inspiration:
http://www.youtube.com/watch?v=ylmwoJDYGjk&feature=channel

Jul 4, 2010
Julie G

I have had my many days of being down because of my hair and self image. My self image has improved after I have gotten my wig, but I still have my moments. I have somewhat come to terms with my alopecia this year. I decided that my treatments that I was trying was just postponing the inevitable, so I decided to stop all of that and take back control.
Thanks for the compliment on my picture, that was the day I got my wig. It was a BIG day for me, the next day was big too for me cuz that was when I buzzed my hair.
I wish you the best of luck and that you have many many better days! Keep your chin up and your head held high and a smile on your face..you are beautiful!

Mar 31, 2011
Devin

Hey LL Marini, thanks for the add. I was just trying to cheer you up like everyone on here does, but I do understand what your feeling and I hope and I know that it will get better with time. I also wish I could post a pic on Facebook like you did. Not many people even know about my hair on Facebook, but maybe you have inspired me… someday.

Mar 31, 2011
Christy Ingram

Thank you for accepting my request! And Thank you for the compliments. You look pretty in your turban! I am seeing more and more people wearing these and scarves, as well as bb caps and am wondering is it just for fashion? I have been afraid to ask. Maybe a good thing with alopecia is in the summer we won't get as hot? This will be my first without any hair, unless it decides to grow back. Alopecia sure is an emotional roller coaster! AW is one of the main things thats helps me most, especially on the not so good days. Hope your days get better and better!!!

Apr 12, 2011
R0BB

Hang in there Marini - If you jump ship ...we'll all jump ship ...It'll be ANARCHY !!

Apr 13, 2011
liselle

Hi Lisa
I hope you are well.
Please join up at www.wigsupport.com.
A fabulous forum, run by kathy Tonkin, who also owns Gallery of Wigs.
A lovely helpful group of women, who have YEARS of experience/knowledge.
Just ask away.... all questions you have.
regards
liselle.

Apr 13, 2011
Pat

Hi Lisa thanks for the friend ad. I really like the darker wig on you and also the curly one is cute. What was the colour of your natural hair?
I understand your getting depressed over this disease, it's not much fun that's for sure. It's a progression towards acceptance and it can't be rushed. We all get there in our own time. I used to have panic attacks that kept me housebound for a long time, or I would only go out with my husband. Even nowadays I can feel quite over sensitive of the environment when I'm out and about. Mostly I'm okay but let me tell you it's taken years :) Glad to make your acquaintance here on this wonderul site.

Apr 20, 2011
Pat

Well thanks Lisa you're a beautiful woman too. I love your white cat! I had one just like it with one blue and one brown eye. Apparently a lot of white cats have different coloured eyes.

Apr 22, 2011
Mary

Thanks, Lisa-Lynn. Three years ago I wouldn't have imagined going "out" would just become normal for me. But, it has. Good luck on the journey. Mary

Apr 25, 2011
Mary

You're doing great, and you have so many people here on AW who understand and support each other. AW didn't exist when I was first going through my hair loss and dealing with being bald. I'm so thankful for this community and my friends here.

Apr 25, 2011
Aunt Janet

Red Ribbon

Apr 26, 2011
Cheryl, Co-founder

Hey Lisa, I wanted to stop by and say heh! We really appreciate all of your input!

Apr 28, 2011
onekeylady

I am doing great. 2nd day of wearing scarves to work, so getting the stares and glares...LOL! Told them I had AA but NO I don't drink. HAHAHA I love making them laugh with me. Laughter is the best medicine for everyone.

Apr 28, 2011
onekeylady

I was just looking at your photos. You look great! I have not shaved my head yet as I want to see if any of it is going to grow back in since this flare up has only been a month now. I have about 3 half dollar size spots, on the sides and low back of the head. But then there are several quarters/dimes and nickles thru out the top and back crown. The ones in the back crown have all grown together now so that it looks like someone took a razor and shaved a streak thru the crown and half way down the back. Then of course several more dime sizes thru the sides and back. I am curious as to how long your spots have been there? And how many times if any has yours come back? Not sure when to give in and just shave it off since this is only the second flare up?

May 2, 2011
onekeylady

Way To Go!!!! Love the pic!

May 4, 2011
Maria Gamba

Yes, i'm...

May 4, 2011
Sophia

Thank you for accepting my friend request. I'm great, how are you? Thank you for the compliment :)

May 7, 2011
David B327

LOL Well I don't need it that's for sure!

May 8, 2011
Maria Gamba

Thanks! I love it!!!

May 8, 2011
Tallgirl

Plant a Victory Garden in that yard! I used to call me garden my Secret Garden, because I also had high fences. You can watch the garden grow as you grow, have food for the family and flowers to cheer you...plus include birdbaths, banners, furniture, sculpture and umbrella tables or hammock. Your own escape and "Tahiti" can even be a spot for parties and dinners with hubby!

May 11, 2011
Tallgirl

Try this: think of someone else with a gripe different from yours, and say to yourself, "Well, at least I'm not _____ (name of person)!" so no ones knows but you. Then say a little prayers for that person. It may take your mind off of yourself.

May 11, 2011
Pat

Red Ribbon

May 12, 2011
carol

you rock the bald look,, I like you that way

May 12, 2011
Bald and Fabulous AKA Terri

Oh wow .....all the way from Italy !!!! How wonderful. I do hope you have a wonderful visit. You are beautiful and dont let anything take that away from you. I would go in a scarf and just rock it. :-)

May 13, 2011
Bald and Fabulous AKA Terri

That is wonderful about your reunion. I saw the pics....looks like you had a wonderful time. Confidence comes in time, I have been working on mine for 28 years. So give yourself some time. Actually if you check out my new blog (Old Memories Resurfacing)....you will see that confidence will always get shakin. It's our next steps that matter. One step, one day or even one hour at a time. You are doing great.

May 15, 2011
Tallgirl

Red Ribbon

May 23, 2011
Norm

The L, - no-one tells me anythin'.... probably just as well! :)

Still-In-The-Dark Norm xxx

May 23, 2011
velvet

aw thanku i am gd thanks just gotta go do my paper round :/ xxx

May 31, 2011
BTB (John)

Red Ribbon for courage

Jun 5, 2011
Pat

Good for you! It may be one step forward two steps back but that's okay.

Jun 6, 2011
Bald and Fabulous AKA Terri

I'm so proud of you Lisa. You have come so far in such a short period. I too love sitting in my yard and feeling the breeze whisper across my head and the kiss of the sun. I wish you all the best and maybe one day we will meet. I think you should look into going to DC next year for the NAAF conference.

Jun 29, 2011
R0BB

Jul 1, 2011

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