All hair gone when I was 22yrs, lost all within 3 weeks. Since 6yrs old I started developing bald patches, they gradually got bigger especially on the sides and the back of my head, which never regrew.
Wore a Wig for 1 year when I had no hair, hated it as it was not me and felt like I was living I double life.
I'm now 53yrs old, and feel so lonely, I have gone through a lot, no on accepts me for who I really am, they just judge me by my 'Looks' !!
Please write i love to share
Keith
Bargbys@gmail.com
I'm sorry to hear that your life has been a difficult one.
Actually, for me, having alopecia universalis has meant freedom from hair and the responsibilities that go with it. I'm very open with others about the disease and require that they respect me for the person that I've become. As often stated by people with AU, "I'm not my hair" and those who would discount me because of my looks are out of my life very quickly.
You are only 53; this may be hard to understand but that seems very young to one in their mid-60s. As I volunteer and attend events at our local senior center, I'm reminded of the gift of being otherwise healthy. I also lost a husband who suffered over 10 years with a crippling disease so putting all things into perspective, I'm grateful for each day.
There are many here to communicate with so don't hesitate to start a blog of your own, and there may be some interests that you can share with others. You might take a peek at the single's group to find others who are facing some lonely times as well.
Susan Innes
I'm sorry to hear that your life has been a difficult one.
Actually, for me, having alopecia universalis has meant freedom from hair and the responsibilities that go with it. I'm very open with others about the disease and require that they respect me for the person that I've become. As often stated by people with AU, "I'm not my hair" and those who would discount me because of my looks are out of my life very quickly.
You are only 53; this may be hard to understand but that seems very young to one in their mid-60s. As I volunteer and attend events at our local senior center, I'm reminded of the gift of being otherwise healthy. I also lost a husband who suffered over 10 years with a crippling disease so putting all things into perspective, I'm grateful for each day.
There are many here to communicate with so don't hesitate to start a blog of your own, and there may be some interests that you can share with others. You might take a peek at the single's group to find others who are facing some lonely times as well.
Hugs, Susan
Oct 21, 2011