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Amanda

43, Female

WA state

United States

Profile Information:

Relationship Status:: In a Relationship
About Me:: I'm live in WA state. I've had alopecia since I was 4 (and after some interogating I found I should edit my "me" section.) It began with a self attempted hair cut. My mom had taken me to a stylist to have it fixed and she pointed out the bald spots. A trip to the dermatolgist dubbed me with alopecia areata. Later when I was about 8, a round of routine vaccinations caused my hair to fall out except for the couple patches here and there. I was almost bald but the hair eventually grew back and for a long period of time I would only lose patches. I've never had body hair, which in this day and age isn't a bad thing. People actually pay money for hair removal. I've never seen myself with eyebrows and in the last 6 months, I've lost the eyelashes on my right upper eyelid. I feel in many ways I've been fortunate, especially after reading so many of the other's stories. I did have the hair on my head though puberty and thanks to loving friends and family have always felt beautiful even when it gets the best of me. I have to say though, it's started to take a toll on me in the last 6 or 7 months. In addition to the eyelash loss, I'm losing more patches of hair.
I have to contribute my career choice in science and research to my experience with alopecia and hope to some day make great scientific breakthroughs.
Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older

Comment Wall:

Roger

Welcome.

Mar 23, 2008
Cheryl, Co-founder

Hi Amanda,

I wanted to welcome to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder

Mar 23, 2008
Zoe Dusting

Hey Amanda!! Haha oh i'm glad they brought back good memories. I live in rez right now...it definitely can be a bit wild. Hehe. Lots of goodtimes! How are you doing? I like your puppies. They are little darlings. Aren't pets just the greatest?

Mar 25, 2008
Dee Connelly

Hi Amanda, It is a beautiful day today in Gettysburg. It is about 64 degrees. We might take our Harley out today and enjoy a ride.

Mar 26, 2008
Dee Connelly

HI Amanda, Yes it was a great ride on the Harley!! We get alot of snow here too!

Mar 27, 2008
LeslieAnn Butler

Hi Amanda,
Which college does your friend go to? If it's Portland State, I live right above it!
Thanks for being interested in the book. I'm hoping it will help a lot of women. If you want to give me your email address, I will put you on the mailing list and let you know when the book comes out and how you can get a copy!
Hugs, LeslieAnn

Apr 5, 2008
LeslieAnn Butler

Got it, girlfriend!
LeslieAnn

Apr 6, 2008
Donna Evans

I'm glad you got on! Your eyes are SO blue and beautiful!

Apr 11, 2008
Donna Evans

I went back and looked at your pictures. I didn't notice that you didn't have eyebrows the first time I looked at them. In one picture you have them though. Did you pencil them on? Either way you look great though. I have only lost a little bit of one eyebrow and it grew back. I have never had any hair on my arms though. It's a really strange thing. Anyway, I hope if you need to talk sometime that you will let me know and we can make time for a cup of coffee or something.

Apr 19, 2008
LeslieAnn Butler

Okay Mandy, you'll be one of the first to know about the book! It just went to the printer! Hooray!
I love your doggies. What cuties!
LeslieAnn

Apr 30, 2008
Donna Evans

Hi Amanda! How have things been going? Can you believe this crazy spring we are having? Trying to decide what the wear in the morning is a challenge! It's was a beautiful morning today though. I took yesterday off and ended up mowing the lawn in the rain. I hope you will have a relaxing long weekend!

May 23, 2008
LeslieAnn Butler

Hi Mandy,
Did you get my email about the book? Advanced copies are available now! Yay!
You can get it online -- go to my page and click my web site. And let me know how you like it!
LeslieAnn

May 27, 2008
LeslieAnn Butler

Hi Amanda,
No, you don't have to use PayPay. That confuses a lot of people. Just don't sign in -- you'll see on the lower left instructions to "Continue" if you want to use another card. Let me know how you do! I promise, it works!
LeslieAnn

May 28, 2008
Danna

Hi Amanda,

You know when I look at your photos I only noticed the vibrant person you are. Keep smiling girl. I also live in WA State where it is quite simply rainy (beautiful). I think a trip to the falls is in the near future. Danna

May 30, 2008
Donna Evans

Hi Amanda! DeAnna tells me you are going to be in a book! I like all of your new pictures.

Jul 17, 2008
Marie

Amanda, I also live in Eastern Washington -- Richland. Are you near me? If so, do you work at the site?

Dec 13, 2008
Brittany

hi amanada!!
you're welcome!!
thanx for remembering me from the tyra show!
=]

Jan 24, 2009
Shawn

What's up Girl..I'm from Washington too. I'm Shawn

Jan 31, 2009
Donna Evans

Hi Amanda! I have not been on in forever! I talked to DeAnna yesterday and she said you had a nice ski trip recently. We should get together some time for coffee or what ever. It can be at the last minute if you want. DeAnna has my number!

Feb 13, 2009
Donna Evans

That's very good news! Try to look at something very close to your hair style and color. Don't be turned off by how thick a wig feels because it looks natural to other people even if it feels weird. Try to take some pictures so if you don't buy one you'll still be able to get used to what it's gonna look like if you ever do have to pick one out. I hope you have a safe and fun trip to Portland.

Feb 16, 2009
Donna Evans

How did things go Amanda? I'm so curious. I bet every thing looked cute on you.

Feb 25, 2009
Donna Evans

Yes some pictures would be great if you're OK with that. It's weird how they feel so huge and thick but look natural to everyone. It's human hair huh? I have not made that jump. I must have heard some time that they are a lot of work. You'll have to let me know about that. So are you wearing it out of the house?

Feb 26, 2009
Donna Evans

Did you keep all of your own hair? I did that for a while.

Feb 28, 2009
Donna Evans

Amanda it looks so good! It really looks like your hair. One really good thing about staying with something close to your own hair (with your first wig anyway) is that you think people are noticing and you're wondering if they think you are just doing something weird and then all the sudden they say something like your hair looks so good today or who colored your hair it looks great. Then you realize they don't even know. But the other thing is when strangers look at you and you think they can tell and then the say something like they love the color of your hair or they think the cut is so perfect. After all the years of being self concious because you thought your hair was too thin or some one may see a bald spot you can leave it all behind because you look like you have a full normal head of hair. People just notice it because it's really pretty.

Mar 1, 2009
Donna Evans

It will go away. Infact, some mornings I'm in such a rush that I head for the door and realize I'm not wearing it and I didn't even know it. I never feel it on my head any more.

Mar 4, 2009
Brittany

Happy Birthday!!!
=]

Mar 12, 2009
Brittany

You're Welcome! =]

Mar 13, 2009
Donna Evans

Sorry Amanda, I didn't get your message and then I was on vacation for a week. Let me know the next time you'll be in town.

Mar 31, 2009
Donna Evans

It went well. As a group we received over $5000 in donations.

Apr 1, 2009
Lori Black

HI Amanda, Thanxfor adding me as a friend! Blessings to you!!
Lori

Apr 18, 2009
Lauren Simpson

Hey . Im lauren and i live in seattle.....i was just wondering what part of washington you live in? I would love to meet people who live in my area ho have aa.

Dec 6, 2009
Pat

Hi Amanda, are you eating dairy-free as well as gluten free? Great news that you're hair has come back in. Fantastic!

Jan 10, 2010
Nachiketa Sanyal

Hi amanda, really excited about your glutten free diet.. just had a couple of quick questions, if you may.
1) did you get yourself tested for any gluten intolerance before you embarked on this diet?
2) What all constitutes high glutten food? what abt dairy products?
3) how long after you went gluten free did you start observing hair regrowth on a significant scale?
I'm adding you as a friend.. pls email me.. thanks!

Nov 1, 2011