Chentil Changing

Female

Cocoa, FL

United States

Profile Information:

Relationship Status:
Engaged
About Me:
I was recently diagnosed with alopecia universalis about 6mos ago and it has been a long hard journey but I am slowly starting to gain some confidence back. I am joining because I feel like this will give me some empowerment over this disorder and by talking to others I won't feel so alone.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • Eric W.

    YES! What do I win? lol I'm sure you will find what you are looking for and much more on this site. Last night I met up with some people I met on here who have Alopecia. We had a great time.

    Nov 20, 2010

  • Eric W.

    We are all over the place! I'm sure you will find people in your area. Keep in touch!

    Nov 20, 2010

  • Neesh

    Yes i have Alopecia Universalis. When i was 17 i lost all my hair on my head. THen i lost my eye lashes and eyebrows. My eye lashes grew back and now my eyebrows are starting but are growing slowly. Ive lost hair in other place too. Ive havent had any treatment whatsoever. But am considering it now. I just dont know where to start. Im scared, ashamed, and just nervous about the whole transition.

    Nov 20, 2010

  • Neesh

    Thanks you so much and i wont hesitate. It feels good to know that i am not alone and can go somewhere when i need someone to relate to me. Cause people really dont know what we go through dealing with this everyday. I hope that you get the results that you hope for as well. I do have a question tho. The shots that you get are they painful?

    Nov 20, 2010

  • Cheryl, Co-founder

    Hi Chentil, Welcome to Alopecia World. We look forward to your contributions to this great community.

    Nov 20, 2010

  • Roger

    www.naaf.org

    =)

    Nov 23, 2010

  • LeslieAnn Butler

    Hello and welcome, Chentil!
    How are you today? I have universalis, too.
    Leslie Ann

    Nov 23, 2010

  • JeffreySF

    Hi Chentil,
    Welcome to Alopecia World.
    Jeffrey

    Nov 23, 2010

  • Shannon

    Hi Chentil, I am going to give you a website so you can look at the freedom wigs. They are amazing. They are the closest thing to having you own hair. They make them to fit your head by taking a lazer scan of your scalp. newlifehair.com
    If you have any questions, Ill be happy to answer them.
    Take care,
    Shannon

    Nov 23, 2010

  • JeffreySF

    Your're welcome Chentil!
    Have a Happy Thanksgiving!!!
    Jeffrey

    Nov 24, 2010

  • Pat Latina

    Hi Chentil - Welcome! You've come to the right place. We are all here for you.

    Nov 28, 2010

  • Neesh

    Hey! Happy New year! How have you been? Its been a couple months i hope all is well. Let me know how u been doing.

    Jan 24, 2011

  • Devin

    Hey Chentil, there is an Alopecia group that gets together here in Orlando
    e-mail Hazel and she will give you all the info you will need.

    cflalopecia@aol.com

    Apr 27, 2011

  • Jen

    I'm just happy I can do the all natural look. Ha ha you just never would have guessed what kind of luxury hair is and how some of the hair is a necessity. Like eye lashes I hate getting stuff in my eyes and my nose is always runny or how strong smells really are :) it's just a whole new world without hair. Since 2009 I'm still going strong just have those times when it gets rough.

    Nov 10, 2011

  • ShoCorona

    hey there Chentil... thanks for the add :) It's tough losing our hair eh, but hang in there and continue to use this site as there are lots of lovely peeps on here.. HiPpy hugs shO xx

    Feb 22, 2012

  • Jen

    All I have coming in is a little bit of arm hair, nothing else.... How is the engagement going? Were wanting to go to Ireland but not sure the details yet.... Having trouble with it.... How is he reacting to the hair? I hope well!

    Feb 23, 2012