I have had alopecia for more years than not, and would like to share the person I have become with those that are experiencing a similar truth. I know I will receive something in return. : )
Hi! Im from Vancouver too...although I have yet to go to a meeting. I want to, just need to find the time! Hopefully we'll run into each other some time. Good to hear from you!
Hello. I don't know what I did wrong with the facebook link for CANAAF...I assumed copy and paste would work (arghhhhhh)http://www.facebook.com/index.php?lh=f0c30a2e691baed46e8ed098f3c5787c#!/groups/138725316179572/ (second try) You can look them up from their webpage perhaps?? As for getting a support group up and running it seems like crickets in my city. I have met a few people with alopecia but most don't want to meet as a group. I was thinking of heading to a couple local wig shops to post informative posters about a meeting but my major issue is that for me a support group is a conflict of interest as I am now a Rep for Freedom Wigs and I don't want to come off as trying to sell a product. What I have been trying to do is see if my clients would like me to hook them up to begin support groups in their area (with their permission of course)or I refer them to CANAAF. I would LOVE to start a group and really get it to fly...there are so many amazing people with alopecia to meet!
You asked some very good questions on the ohter website concerning the new patent. I have to wonder if this is why he would not disclose how he 'cured' himself - because he wanted to patent it so he could make money. Sure the 'intention' is to give the profits to his group but with no board of directors - he is his group. Profits can be manipulated and frankly I think it stinks that he has held off telling what he did saying it needed 'more research' when all along this is what he had in mind. If I ever thought I would give that group a chance I surely will not now. I hope you will continue to ask the tough questions.
LeslieAnn Butler
How are you today? I have AU, too.
Leslie Ann
Sep 21, 2011
JBean
Sep 27, 2011
Sandra Fournier
Thanks of the friend add!
Cheers - Sandra
Feb 6, 2012
Jennifer Krahn
Thank you for the request. Love the pictures you have! Your tatoo is fantastic!
Feb 8, 2012
Jennifer Krahn
Hello. I don't know what I did wrong with the facebook link for CANAAF...I assumed copy and paste would work (arghhhhhh)http://www.facebook.com/index.php?lh=f0c30a2e691baed46e8ed098f3c5787c#!/groups/138725316179572/ (second try) You can look them up from their webpage perhaps??
As for getting a support group up and running it seems like crickets in my city. I have met a few people with alopecia but most don't want to meet as a group. I was thinking of heading to a couple local wig shops to post informative posters about a meeting but my major issue is that for me a support group is a conflict of interest as I am now a Rep for Freedom Wigs and I don't want to come off as trying to sell a product. What I have been trying to do is see if my clients would like me to hook them up to begin support groups in their area (with their permission of course)or I refer them to CANAAF. I would LOVE to start a group and really get it to fly...there are so many amazing people with alopecia to meet!
Feb 11, 2012
Nikks79
Hello! Thank you for the add : ) Hope you are doing well!
Feb 12, 2012
LilyBell*Murphy'sLawLuvsMe
You asked some very good questions on the ohter website concerning the new patent. I have to wonder if this is why he would not disclose how he 'cured' himself - because he wanted to patent it so he could make money. Sure the 'intention' is to give the profits to his group but with no board of directors - he is his group. Profits can be manipulated and frankly I think it stinks that he has held off telling what he did saying it needed 'more research' when all along this is what he had in mind. If I ever thought I would give that group a chance I surely will not now. I hope you will continue to ask the tough questions.
Jul 26, 2012