Gumi

Female

Clermont,FL

United States

Profile Information:

Relationship Status:
Married
About Me:
I have a 4-year-old girl who has Alopecia.
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • LeslieAnn Butler

    Hello and welcome!

    How are you and your little girl today?

    Leslie Ann

  • LeslieAnn Butler

    I understand your frustration. You want to fix things for her but you can't do anything. However, there is a lot of research going on right now and a genetic link has been found. I predict that within 5-10 years there will be a viable treatment for this disorder! Something to look forward to.

  • LeslieAnn Butler

    Don't worry about asking questions!

    As I wrote in my book, Sadbe can be very uncomfortable, producing itching,  hives, blistering and loss of pigmentataion,  and hair growing results are mixed.  New growth will be evident after six months and treatment has to continue to keep it growing in. It can help some people, so you may want to try it, but your little one may not like the experience.

    Regarding dairly and gluten free, I am doubtful this would do much (I have been gluten free for six years and still have no hair), but of course you can try it. Also, be aware that alopecia may resolve on its own. All her hair may grow back without any treatment at all and never return! It's unpredictable.

  • LeslieAnn Butler

    I hope it will resolve on it's own, too! Please let me know! And also let me know how you like the book. It has helped a lot of people, including moms with kids...

    Blessings back, and big hugs!