Mary

Female

Thiensville, WI

United States

Profile Information:

Relationship Status:
Married
About Me:
Just diagnosed with frontal fibrosing alopecia and am really scared and upset
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • Susan Innes

    Hello Mary,

    Mary, welcome to Alopecia World. I'm sorry to read about your recent diagnosis and hope that your fear is overcome as the months progress. We all become stronger but it takes some time. I also wish to extend an invitation to join the Wisconsin group entitled "Alopecians in Wisconsin." We have several members in the Milwaukee area. You can click on GROUPS above in the menu bar to begin the process. Many hugs, Susan.

    Aug 15, 2013

  • Mona422

    Mary, I'm using Olux its a foam and it has stopped the itching and I see an improvement! I read some reviews and I was leery but he told me to use it and come back in 6 weeks and he will start a series of 4 injections. I'm following t to the letter, applying twice a day and it works! Good luck and ask your dematologist about it.

    Sep 19, 2013

  • Plain Jane

    Hi Mary.
    I'm assuming you are the Mary who asked about antibiotics vs. antimalarials?
    I spent over a year on doxycycline, with no control of inflammation and rapid progression of hair loss. During that time, my doctor also had me taking propecia, which did nothing except cause chronic dry eye syndrome, for which I then had to take prescription eye drops!) This spring I started antimalarials and after 2 months, the inflammation vanished and hair loss stopped. I no longer take the doxy (or the propecia), and only wish my doctor had put me on the antimalarial in the first place. I would have quite a lot more hair still.
    By the way, the kind of FFA I have is the type that causes a red scalp in the area of attack, with painful little blisters that make my scalp itchy and sore.
    Hope this helps.
    Good luck.
    Jane

    Sep 23, 2013

  • Yvonne

    Your feelings are so normal. Don't be so hard on yourself. It is a hard thing, but it gets easier. Be kind to yourself, and know this phase will pass. So many of us have been right where you are, and we are just fine. My advice is to have a cute wig ready if you need it. Hugs.

    Oct 31, 2013

  • LeslieAnn Butler

    Hello and welcome!

    How are you doing today?

    Leslie Ann

    Nov 4, 2013