Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:
Married
About Me:
I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY


Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):
http://www.alopeciaworld.com

Comment Wall:

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  • Tony

    Thank you for your note and kind welcome and thank you also for this website. My wife and I are trying to educate ourselves and at the same time trying to provide love and support to our daughter. We are actually quite impressed with the way she has been able to handle it. This week we have scheduled two appointments at wig places. I've been impressed with her friends who have been highly supportive as well.

  • strklydkly

    Hi Chery,

    Thank you for your welcome and for the information. I am very excited about joining Alopecia World and will definitely take advantage of the wonderful support and info. you seem to provide. Thank you very much.

  • Kycie

    I am slow to start this connection process; which is such a dichotomy considering I have no support system. So today is my start date. This truly is a encouraging, inspirational, honest and authentic community via the internet. I am grateful for everyone. For now unknown personaly, yet I have no doubt that there will be a sense of knowing in a spiritual and humanistic sense......
  • Natalia

    Thank you and your husband ,Cheryl!
    It was a great idea to create this community .
    The people who has not this problem, can not understand me, but I can know now how feel themselves the other people who has this problem.

  • velvet

    hey thanks for showing me that i wud have never known :) greats to know some appreciates wat i put thanks xx

  • LilyBell*Murphy'sLawLuvsMe

    Thanks for accepting my friend request : )

  • Anastasia

    Thanks for the compliment =)

  • thinlizzyfairy

    hey cheryl! thanks for seeing up such a great site :) is great support when im feeling a bit down in the dumps. doing good tho! the sun is shining, the sky is blue and i have an indian head massage on the way...cant complain :) how's everything your end? x x

  • Tanya

    Hi Cheryl and RJ!

    I want to thank you for creating Alopecia World. Thanks to you we are now running a very active and positive support group in Vancouver, Canada!

    ( On the technical side, how do you manage to create such complete web application? )

    I wish you all the best and, continue to be amazing!

    xoxo
    Tanya

  • tharradin stéphan

    merci beaucoup pour ce site trés complet dommage qu'il n y en ai pas autant en france j'aurais aimer savoir s'il y avait des personnes ayant le méme probléme que moi habitant à coté de chez moi... j'habite à besançon france pas loin de la suisse je suis encore en traitement mais rien ne s'arrange.

  • Mia

    Hi,
    thank you for accepting my friend request and for creating Alopecia World. Because of this site I have learned that I am not alone with this disease.
    It is so good to see that there are strong people like you who learned to accept and to live with this condition. I hope that one day, when I am a little bit older I can deal with Alopecia like you do.

    I wish you all the best!
    Greetings from Germany, Mia

  • Joe S.

    Finally!

  • Theresa

    Wow! Ask me why am I just now seeing your comment?! I am still learning AW. I don't quite know my way around just yet. Thank you for reading my blog. I was feeling some kind of way and I just began to type how I was feeling at eh moment. I am so looking forward to your comments. Even if you do not write anything, I am already flattered that you took the time to read it in the first place. ;) Thanks...blessings

  • HBLady

    Hello, Cheryl. I echo the thanks from others for this site, which I just found last week. I don't have much time to spend on it, but I'm hoping to find some wisdom, inspiration, and acceptance of myself the way I am. I have a question for you in the meantime: when and how did you decide to go bald (shave)? I've been thinking about this for quite a while, but many people discourage it. How did you make that decision? Pam

  • Denise

    Hi Cheryl , i hope all is well and i am so thankful to you and your husband for starting this sight. i am loving the support on this site.!

  • Roger

    Hi Cheryl.

    Will I see you in DC?

  • moonflower

    Hi Cheryl:

    Thanks for the friend add and thank you so much for this site!

    Peace and encouragement,
    Marcy

  • Roger

    Nice Cheryl.

    Not this year. Adam is too young. But they will join me in St.Louis next summer =)

    Say hi to Rj from me =)

  • BTB (John)

    Thanks Cheryl we saw our grandson in Adelaide and we are having him up for a week, we are near the theme parks so we are going to be doing the roller coaste thing. Going to Thailand again next week a quick 5 day trip,I hope. Things are good retirement is getting to be comfortable.
  • BTB (John)

    Jack is 14 and the hormone thing is kicking in which makes visits interesting, and of course conversatns don't last long now since he got so cool. Pat is over the whole travel thing she has become a home and hearth kinda gal, to be honest I am not so keen anymore, we live in a real tourist area and it's such a Nic e place we feel lie we are always on holiday. We are going to a rally to today in support of refugees doing some chantinetc, takes me back to the anti Vivetnam days of the sixteis, will,posit some pics on my FV site. Stay frosty and stay in touch.
  • Allison

    Thank you for the add!! I really appreciate this site. Thank you!! : )

  • Vesselsong

    I found this site as I was in search for testimonials from those suffering with hair loss. Thank you for sharing your story and providing a forum whereby so many are blessed.

  • youarebeautiful

    You all are so brave. I am so proud of you. I am not "there yet." I keep the baldness in the privacy of my own home. One day I will be as brave as you all!!!! I think there is an INdia Ari song somewhere in there --"I am not my hair" I want to be like you ladies when I grow up.

  • youarebeautiful

    You all look like you are having so much fun. I would like to come to the next event!!! Oh please I would like to be amongst all of you feeling free and accepted.

  • youarebeautiful

    I don't live in Detroit so I will not attend. Thanks for commenting back though. I'll get to another event. Thanks again.

  • Piotr

    Cheryl, thanks for the invite to TGIF. I am forced to work a double shift so I can't make it today. Looking forward to it next time. :(
  • ASRN

    I just wanted to thank you and your husband for starting this website. Seeing so many brave people dealing with alopecia has helped me feel much more confident. Thank-you.

  • Kay

    awwe! oh my goodness thank you much! it means alot! :)
  • Miss Peaches

    Thanks for the welcome Mrs.Cheryl! So glad i found Alopecia World.I feel im among people that really understand.

  • Dj

    Thanks so much for the welcome ms. Cheryl. I need some sort of hope and strength at this time.
  • Naomi_My Heart

    Hi Cheryl! My name is Catherine. I am the mom of Naomi, my beautiful three year old daughter. I joined to become connected to a community that will help me educate and encourage her to accept her how she is and be confident. I am so excited!

  • Lori

    Thank you Cheryl, I haven't been on lately but I am so happy that I found this site. It's so nice to know I'm not alone. Thanks

  • PhillyNutz

    Thank you for welcoming me. Happy holidays to you.

  • JeffreySF

    Hi Cheryl,
    I miss you too!!!
    Will Leo and I see you and RJ in St Louis this year?

    Hugz!!!
    Jeff

  • JeffreySF

    Hope to see you there!!!

  • Mark Camora

    Thank you
  • Rhoda

    Dear Cheryl and RJ,

    You guys are angels for coming up with this site.
    Take care and God bless you.

    Hugs - MommaDoray :)

  • Josi

    Hi Cheryl! congratulations on the site and thanks for having me.
    I am living a very important year and also hard, I'm getting married in September and have some fears many expectations, I hope that new friendships in this community can help me deal with all this.

  • bamakelly

    Hi Cheryl! Thanks so much for this site! I was just recently diagnosed with AA and just browsing through this site and reading other's stories has helped me so much. I am still coming to terms with this as I am in the early stages of my disease. I am waiting to get in with a specialist later this month. I have found the hardest part so far to be the guilt over my feelings when others have life threatening illnesses. Just taking it one day at a time and hoping for the best.

  • Shelly

    Thanks Cheryl, I'd LOVE to get together with them.
    I've gotten so brave and am enjoying my new round freedom.

  • margaret staib

    :) Thank you Yes, article was good awareness. Hope all is well, went back to work fulltime so I'm not on comuter as much xoxo Think of you often!
    Margs

  • LeslieAnn Butler

    Hi Cheryl,

    Thanks for welcoming me, but I have never left!

    How are you, beautiful woman?
    Leslie Ann

  • Liz

    Thanks Cheryl for sharing your stories and of course for creating this site. You truly are remarkable! Inspiring to say the least.

  • Marte

    I'm a barber with alopecia.. And would of never picked up a pair of clippers if I didn't have it. Embarrassed to go to a barber I learned to cut my own by trying to hide bald spots. Today I have my own shop and able to provide for a family. I consider my successful because I love what I do and would of never started doing it if I didn't have alopecia...
  • Funnybone

    Hi Cheryl! I've seen the pics of the NAAF conferences, and they look great. What do they do at these conferences?

  • Mom2Ray

    So glad to be back on this site Cheryl. Ray is doing great and now helps others how to deal with Alopecia. I'm very proud of him. This year we are going to the Children's Alopecia Project camp, looking forward to going.
  • Theresa

    Thank you Cheryl.

  • Deeann

    Cheryl: Things are starting to finally take shape. Is it okay to share my project here on AW about my book project? If so, how would you like me to go about that? I'm super excited about the progress it is making, and can't wait to share it with you. I need to catch up with you again before too long to confirm some things that we talked about back in April. I look forward to hearing from you. I hope things are well for you.

  • Lovelife

    Hi Ms. Cheryl , I'm Jayla and I'm so happy you have a place for us to come to . I didn't think there was anyone else's like me . I am so glad my mm found this place. Wow , there are a lot of kids and adults like me. I can't wait to meet more people like me . Thank you Ms Cheryl
  • LeslieAnn Butler

    Goodie,  I would love to meet you...when are you coming out here to Portland?