I'm trying to think of what to say about me. I'm not accustomed to talking about myself, so here goes:
I was diagnosed with cicatricial alopecia/lichen planopilaris in June of this year. I was prescribed Olux-E foam for the itching/pain which I am happy with at the moment. I was also prescribed Rogaine 5% which I am NOT happy with since the strong smell set off my asthma/allergies and it grew hair just about everywhere BUT my scalp. It cost me $75 to get my face waxed!! Bwahahahaaaa! I can laugh about it now, but maaaaannnnnnn three weeks ago I was highly annoyed.
Now, I'm just strategizing when to get out the headblade. My derm doesn't think I should do it since I still have plenty of thick hair on the back and sides, for the moment She actually suggested a perm. Yes, ya'll read it right, a PERM. I couldn't believe it either.
To me putting lye on my head so I can pull off a comb-over is out of the question, and I'm getting annoyed of hair being everywhere in the house.
So, the next logical** step for me is to get rid of it.
**I know, what's logic got to do with it, right? ;)
UPDATE: Got tired of the spots and shaved on 2/25/2011.
Angie: I love your pictures. Your hair before you shaved is pretty much exactly what mine looks like now, and I too have been relegated to wearing my dreads in a ponytail for years. I am cutting them next week! I feel a mixture of anger, sadness, fear, and excitement. Thank you for being here and sharing yourself with those of us with CCCA who are new to this journey.
Hi again Angie. I know what you mean about being ready. This whole journey came about because I was ready to change my hairstyle. I have been wearing dreads since 2001 and I have wanted a change, but once I was diagnosed with CCCA I realized my options were limited. It's hard--I think dreadlocks are beautiful, and they very much suit me, but sadly mine are no longer beautiful, or at least not up to their former glory. I have known this for some time. I have never wanted to be someone who was trying to hold onto my hair, which is why I have decided to cut them despite the fact that I could still probably cover my bald spots for another year or so. I haven't had straight hair since I was in junior high! That will be the biggest change of all, but I will see how wearing a wig goes before I experiment with being bald. Thank you again for listening and blazing a trail. :)
Theresa
Hello Angie...I am your neighbor I guess, I too live in Pearland. Did the Alopecians in Houston every get together as a group? Very interested.
Apr 16, 2012
claudiaclaude
Angie: I love your pictures. Your hair before you shaved is pretty much exactly what mine looks like now, and I too have been relegated to wearing my dreads in a ponytail for years. I am cutting them next week! I feel a mixture of anger, sadness, fear, and excitement. Thank you for being here and sharing yourself with those of us with CCCA who are new to this journey.
Aug 14, 2012
claudiaclaude
Hi again Angie. I know what you mean about being ready. This whole journey came about because I was ready to change my hairstyle. I have been wearing dreads since 2001 and I have wanted a change, but once I was diagnosed with CCCA I realized my options were limited. It's hard--I think dreadlocks are beautiful, and they very much suit me, but sadly mine are no longer beautiful, or at least not up to their former glory. I have known this for some time. I have never wanted to be someone who was trying to hold onto my hair, which is why I have decided to cut them despite the fact that I could still probably cover my bald spots for another year or so. I haven't had straight hair since I was in junior high! That will be the biggest change of all, but I will see how wearing a wig goes before I experiment with being bald. Thank you again for listening and blazing a trail. :)
Aug 16, 2012