Maddy, California, U.S.

Female

United States

Profile Information:

About Me:
I have been diagnosed with frontal fibrosing alopecia and am just devastated. I think mine is brought on by an autoimmune reaction, so is very hard to treat.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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  • Hopeful

    I am new to site and so curious about all that has been tried and possible triggers. I do the same as everyone here- wonder if it was the flu shot, Botox, breast implants, brazillian blow outs??? Should I admit to all of those things? Anyways, now I don't even color my hair....how do I read these posts more thoroughly?? Is something wrong with Vitamin A? I have a hair supplement that I have been taking that is loaded with it.
  • Hopeful

    If you ever remember that other doctors name, I would truly love to have it. I cried when I found Dr.Goh as I have been to several different docs that basically tell me they don't have a "magic pill" for me. I was hoping she would be my hero. I am a nurse and the hospital i work at started forcing the flu shot on us or we have to wear a mask for 12 hours while we work. My hairloss started 1 year after implants and 7 months after my first flu shot, so not sure which or if either were the culprit, but both on my mind. I have been considering removing my implants, but worry about disfigurement. If I knew for certain my hairloss was related, they'd be out tomorrow. So you had regrowth after explantation? Did you have en-bloc? Any regrets? So word is Vitamin A is bad for FFA? I've never taken supplements before my hairloss.
  • Hopeful

    I cannot thank you enough!!! Big, big hugs!!