Hi Barbara!
Kira really looks forward to hearing from Alyssa, She will be writing back when she gets home today, she didn't get the chance yesterday :) In the beginning, she cried alot, as did I Tho not where she could see, Then she seemed to accept it and has done so much to make sure her school mates know what it is and accept her. At first she wanted no treatment, this is her she said, and I agreed, it is all so invasive for our little ones. After reading on it all I was so afraid of the side effects. Not to mention we have to drive 2 hours to the nearest real "city" to see a specialist. We will be doing that this summer Kira has agreed to atleast talk to someone, about the injections. We have talked to a few adults that had a spot or two and it worked for them, but with the amount of hair loss Kira has, unless they are going to put her asleep, thats ALOT of shots, and she is terrified, as would I be. Its funny, as a parent you are looked to to fix so many "owies" but this...it kills me that I can't fix this and all we can do is try to see what works through trail and error. Right now she is usung a shampoo conditioner and drops from Sallys , There is something called Nioxin, that is used and in some after 8 to 12 weeks shows great results, and this other one has a similar name and is a few dollars cheaper,( but I can't find the nioxin,) and they have mostly natural ingredients verses the Rogaine treatments. We are on the 8th week and should start seeing results I hope soon, if not, well we tried and she smells lovley like mint LOL. Anyway, I will send you the name as soon as I get my lazy bum up and off this computer, I am taking a break from my daily cleaning and packing for a trip to Tennessee this weekend for a week. AaHHhh time to relax finally LOL! Have Alyssa Look for Kiras email soon!
Kirsty

Hi again! The shampoo is called Nutri-ox ( I think LOL) SO far there are only about 8 baby hairs we have found after 2 months.. but so far her hair loss has become more rapid. We have been fortunalte that her hair loss started almost like a all around head band.. She has about 2 or 3 inches all around her head, and now about 3 large spots on the top of her head. She still has her bangs, but the smaller spots are now wide spread, but her hair is fair so it doesnt look as bad as it is.. Are the shots painful? How does she handle it and how many do they do?

Hello!
I know it has been a while and we havent been on to much, this summer has been crazy hectic! How have you both been? How was your summer? Is Alyssa still in treatment? Kira still says she doenst want to try anything but the natural and shampoos, she is afraid of the needles and reactions the creams may cause. She is still using the Nutri-ox shampoo, conditioner and drops from sally's and after 3 months it has helped with some baby hairs although she has continued to loose other hair. She stays at about 70% loss right now. We have recently noticed her arm and leg hair has begun falling out, and doenst have much left. She say cool! No shaving when I am older LOL.... I hope with school starting in a few days it doesnt become more rapid. SHe hasnt been wearing her scarves because she says she doesnt care, so I am very proud of her:)
Tell me how you all are and I will talk to you soon!
Love Kirsty (mom) and Kira