sallylwess

Female

Colorado Springs, CO

United States

Profile Information:

Relationship Status:
Married
About Me:
Mother of five children, four of whom are living, I blamed my sudden hair loss and loss of eyebrows on the unexpected death of my youngest daughter. I finally got a biopsy that confirmed that rather than alopecia areata, I had Frontal Fibrosing alopecia. Now, I struggle to come to terms with this while also wondering if the treatment to halt the progress works.
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):
http://www.sallysbloggingspot.blogspot.com

Comment Wall:

Load Previous Comments

  • DeniseC

    Hi Sally

    Thanks for inviting me to be your 'friend'. We needs friends in these circumstances. This is the only forum I belong to, and I think it really does help. The message we both responded to was surely heartbreaking - to feel so desperate is dreadful. I just don't want to feel all those emotions again.

    Denise

    x

    Mar 31, 2016

  • Wyobalance

    Hi Sally,

    I've been trying to figure out how to get in touch.  I'm not so good at this blogging thing.  If you remember, we met the first day at the NO conference, I was sitting with Marilyn.  I have since met up with Kathy Walker when I visited my grandson/family in Castle Rock.  I live in Cheyenne, and had someone in Ft. Collins give me a demo on the Evolve Volumizer.  I don't know if that is an option I will choose.  Hard decisions!!  I hope to hear from you.  I think our FFA hairloss is similar. wyobalance (Nancy)

    Aug 23, 2016

  • Kathy in Denver

    Hi. I want to thank you for you open response a few weeks ago. I think I sent you a friend request that is pending. I have sent a request to cu to see if they would help sponsor a support group but have not heard anything as of yet. I u derstand others have tried as well so we will see

    I noticed in a post somewhere that you had someone who made toppers. Can you share your experience?

    Jan 15, 2017