RobynCS

Female

Albany, NY

United States

Profile Information:

Relationship Status:
Single
About Me:
I'm a single mom of two high school children. I've had alopecia for 8 yrs and now it's just about AT. Went to the NAAF conference in Indy. Next best thing to living in Italy...

I found a good acupunturist too this past year. He really helped me emotionally and I went to him for herbs (chinese, ha) for about 8 mo. Now, Im tired of taking 20 capsules a day and spending so much out of pocket cash on pills. As for the derm doc, after 8 yrs of monthly injections, then 4 mo. of oral medrol two different periods, i really maxed out my steriod use. I stay on the fosamax and work hard to keep up my bone density. Must say there are no 'physical' aches or pains with alopecia.

Back to my wig permanently until I'm brave enough to bear all. Must say I'm grateful for it and all my friends here.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

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  • BTB (John)

    Hi awesome story single mom and AA now that's a real tough gig thanks for supporting Pat and does Jeffery know everyone on AA world I am going to the States in Oct on a road trip with a mate our 4th and will definitely be meeting Jeffery in San Francisco he is a really cool guy. John
  • margaret staib

    Helllo my friend! How are you :)
  • Brent Cairns

    Thank you Robin for sharing all your thoughts on this post.

    My name is Brent Cairns, from Auckland New Zealand (I have alopecia also)

    The purpose of this post is to ask you if you could please supply me with some info for my studies. I'm definitely not selling anything. I am not buying anything and I don't work for a Wig company whatsoever nor everhave.

    Q1: What are the problems, if any, that you have experienced or currently experience with wearing Wigs?
    Q2: What are that you believe are the problems that you've have/ had experience(d) from Wig suppliers/ retailers?
    Q3: What support do or did you receive from these Wig suppliers/ retailers, if at all?

    Thank you so much in advance!