Prayer

Female

Unknown

United States

Profile Information:

Relationship Status:
Married
About Me:
Curing/Coping
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes

Comment Wall:

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  • Cindy

    Hi Prayer, welcome to the group. I am sorry to hear you daughter has had no success with treatment. My daughter tried various creams with no success. In December we went to a new doctor and they suggested squaric acid immunotherapy, otherwise known as SADBE. It is safe for long term use and has good results. Basically, we are shocking Sam's immune system by confusing it in hopes to wake up her hair follicles. The process begins with sensitizing the arm to see if the body produces a reaction in the form of a rash. In our case she did on the first try. If you scalp produces a rash then your body is reacting to the treatment. It can be a harsh treatment and some people have too sensitive skin to be able to tolerate the rashes and itchy scalp. In some cases the body produces such a reaction the body can't handle the treatment. Our doctor has been cautious with Samantha and we have had our set backs due to her bodies response. Sam did get a blister from the skin test and we had to wait several weeks for it to heal and then we did a small spot at the doctor's office and her arm picked up the rash and her scalp nearly blistered. We waited several weeks for a second treatment and then eventually we worked up to weekly. In May she had a full body response or at least that is what the doctor thinks. She broke out in a rash all over her body. We had to wait 3 weeks for it to heal. Then, we saw the regrowth happening. We also cut the dose in half. She is now getting lots of regrowth on he scalp only. The doctor said we can try increasing to 2 times a week now. If you google SADBE you find articles on this treatment. In the meantime, Sam is a happy girl and she has not minded wearing a wig. She has been since Dec. We are getting her new wig in two weeks..How is your daughter doing? Please write anytime..cindy
  • Trina

    Hello Prayer,

    Long time no hear from. I have been soooo busy. How is your daughter doing? I hope all is well and stay blessed.
  • Leah Larson

    Is Prayer your real name? EIther way, it's beautiful and creative!