Ohio

Female

United States

Profile Information:

Relationship Status:: Married
About Me:: I am 44 and I have a 9 year old son that was born with Alopecia however we have been told that it may be contributed to genetics (simular to Ectodermal Dysplasia) however he only has the side of effect of an absence of head hair. We have seen several specilaist and without my husband and I being tested we are not sure if it is genetics, the only other alternative is to have a biopsy done on our sons scalp, which we have been told may not help to be 100% sure as to whether or not it is Alopecia so we choose not to do this, as we do not want to leave him with a scar. I have spent hours upon hours of research only to find out how rare it is for a child to be born with Alopecia. My son is very involved in sports, school activites and plays the piano. He is very confident however I worry about how the alopecia will effect him in his teen years. I am looking for feedback from others that have children born with Alopecia or a genetic issue that has casued their child to never grow hair. (My son does have eyelashes, eyebrows and normal body hair for a 9 yr old).
Do you have alopecia?: Parent or guardian of child with alopecia
Are you age 18 or older?: Yes - I am 18 or older