Let's Solve This

Female

Semora, NC

United States

Profile Information:

Relationship Status:
Married
About Me:
Recently diagnosed with Frontal Fibrosing Alopecia.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • Nancy79

    Hi,

    I tried to get enrolled in the Duke study but they told me I could only participate if I traveled to one of the research sites. Is this what they told you in order to participate? Traveling isn't in the cards for me.

    Thanks,

    Nancy

    Sep 25, 2015

  • LeslieAnn Butler

    Hello and welcome!
    How are you today?

    Sep 25, 2015

  • Wyobalance

    Go girl!!  We need more people like you to solve this!  It is great there is a study going on at Duke.  I am a CARF Patient Outreach volunteer.  You are welcome to call me if you wish  307-635-7898.  Th/F often best, weekends usually good too.  Though I will be out of town a bit in October.  I see on the CARF website there is a Winston-Salem support group available if you were interested.  I look forward to hearing how things go for you.

    Sep 27, 2015