Thank you for the Friend Request!  Delighted to have someone I can ask questions about Xjelanz.  No, I do not currently take it or have I ever taken it.  But, I am thinking about the possibility of trying it.  What a frustrating condition!  However, I thinking having to deal with doctors who don't have a clue about it is even worse (LOL!).  I guess we are just not "lucrative" enough for Big Pharma to offer any real help.  Will be in touch if I have any further questions.