I have had alopecia for 7 years. It started out as areata, but I have also lost all of my hair twice and it is now regrowing again. I would love to talk to people locally in the Vancouver area to share stories and treatments and just to be with other people who have alopecia.
Hi Chris, I read the blog you wrote about your experiences with alopecia and how you think in most cases it can be healed. This has really given me hope and I can relate to a lot of the things you said, so I just wanted to write to you to thank you for your inspirational words.
Chris...I´m very depressed...I have FBT that bis getting worse...at home nobody understands me... I bought a human hair wig but I can´t bear it. Any piece of advice?
Hi Chris!
Sorry, I don't know of any support groups in the Lower Mainland... When I was going through treatment, my dermatologist tried to find some support groups based around kids, because I was only 11 when diagnosed, but she never found anything, and I still haven't found anything since. I'm not sure if I'd be interested in a support group because I've sort of made peace with the whole thing, and I'm not sure if it would help, or maybe bring back some of the emotions. Right now I'm actually in Quebec for a few months, so I can't do anything until I get back!
Hi Chris ..thanks for your precious time...I´m single without children...living with my parents again. The don´t understand me..I have female baldness pattern...all the front part of my head with little thin hair awful!! I always care what people think...and I´d feel ashamed if they realise I have a wig on. I bought a human hair wig last year but I can´t bear it all the time. Suggestions!! Thanks a lot!
Thanks a million!! Your are very sweet. I´m very angry for this but I know that feeling is destroying me. I read the first book you mentioned, I will look for the second one. Kary.
I haven't been to any support groups in the Lower Mainland although I understand there is one that meets every three months or so. I was informed about it through Canadians with Alpocia page here on this site. Welcome back to Vancouver!
I'm pretty well adjusted with the whole thing & in some cases it's been a positive experience: as an entertainer, I get a lot of attention (In my field, that's a good thing), so a support group isn't a first priority, but I wouldn't rule it out.
Keep in touch - Jennifer
Hi Chris. Thanks for your note. For some reason it did not come to my email. I will have to look into that. I just saw your post on Canadians with Alopecia. I haven't felt as lonely as you - my mom has alopecia to. She lives downtown Vacouver, I live in Gibsons. Are you familiar with the Sunshine Coast? I have two kids Owen 8 and Gabrielle 6. I have been married for 18 years this Oct. I have had alopecia for 25 years. I started with AA at 13 and then moved on to AT by 21. I had a great hair stylist that actually took me wig shopping on his day off. He was also the one to introduced me to vacuum wigs - changed my life. Look great all the time with out the fuss and muss. How long have you had Alopecia? Hope to chat again soon. I hope I get your comments on my profile page. Otherwise I will keep a look out for you on this group site. Thanks Chris.
Hey Chris! Sorry I've away from the site for too too long, and just saw your comment! I'd love to start an alopecia group, or just have a few friends get together to support one another and share our insights! :)
Hey...sorry I saw Tanya's last comment. I live in Vancouver, and have yet to meet anyone with AA. I'm 21 and have had it all my life. I don't wear a wig, but I would love to finally meet another someone(s) with AA. Could you guys keep me in the loop if a meeting or anything like that develops?
JeffreySF
Welcome to Alopecia World.
Jeffrey
Feb 15, 2010
LeslieAnn Butler
How are you today?
LeslieAnn
Feb 17, 2010
Chris Jeffer
Feb 17, 2010
Brandy Snap
Mar 16, 2010
Sarah McA
Mar 19, 2010
Karina
Apr 2, 2010
Heather
Sorry, I don't know of any support groups in the Lower Mainland... When I was going through treatment, my dermatologist tried to find some support groups based around kids, because I was only 11 when diagnosed, but she never found anything, and I still haven't found anything since. I'm not sure if I'd be interested in a support group because I've sort of made peace with the whole thing, and I'm not sure if it would help, or maybe bring back some of the emotions. Right now I'm actually in Quebec for a few months, so I can't do anything until I get back!
Heather
Apr 3, 2010
Karina
Apr 4, 2010
Karina
Apr 4, 2010
Jennifer
I haven't been to any support groups in the Lower Mainland although I understand there is one that meets every three months or so. I was informed about it through Canadians with Alpocia page here on this site. Welcome back to Vancouver!
I'm pretty well adjusted with the whole thing & in some cases it's been a positive experience: as an entertainer, I get a lot of attention (In my field, that's a good thing), so a support group isn't a first priority, but I wouldn't rule it out.
Keep in touch - Jennifer
J
May 20, 2010
Jennifer
May 20, 2010
Nikki
Jul 13, 2010
Galena
I don't mind you posting the blog. I'm glad that you like the idea and thank you for the friend invite.
Hugs,
Galena
Aug 14, 2010
Tanya
Jun 6, 2011
JBean
Jun 26, 2011
Tanya
I just turned on AlopeciaWorld's email notification again (thought it was on!) I can be better reached at laundrylimbo@gmail.com.
I'm looking forward to us all meeting up :)
Jun 29, 2011