Di

Australia

Profile Information:

Relationship Status:
Single
About Me:
parent of a child with alopecia universalis
Do you have alopecia?
I do not have alopecia
Are you age 18 or older?
Yes

Comment Wall:

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  • Christel Hertz

    Hi Di,

    My husband used to live in Gisborne and a lot of years in Macedon. I am from Holland and we met there. When we came back to Oz about 7 years ago we lived in Macedon and Sunbury. We have been to Bendigo several times. It is a beautiful town. For the last 3 years we lived in Paynesville in Gippsland (Vic) But since 8 months we live near Perth WA. We have had a wig for Jennifer from when she started primary. We heard from someone about Angelwigs in St. Kilda and that where we found the most beautiful Freedom hair wigs. The lady who runs it, Angela ,is fantastic really warm and understanding. Jennifer loves her. The wig is fairly expensive but we wouldn't buy anything else. If you are on government benefits you can get over a $1000.- towards it. When we got Jennifers first wig we claimed that benefit. Angela knows more about this. We travelled three hours there and three hours back to see her but it was worth it. At the end of this year I am going to organize another one for Jennifer, so we will fly from W.A. to see her (we can't get them here.) It has given Jennifer the confidence that she needs especially at school. If you would like more info on Angelwigs let me know. Jennifer is using DCP through the hairclinic at the skin and cancer foundation. Prof. Sinclair runs that, he is great. I don't know what you have tried but he is the leader in the field of Alopcia in Victoria if not in Australia and you can see him at the Skin and Cancer foundation in Rathdowne street Carlton. All the best.
  • Christel Hertz

    hi Di,

    Freedom wigs are produced in New Zealand and these are the same wigs Angelwigs provide. With Freedom wigs, you have to have several fittings, they are made by taking a mold of your head and that mold is send to NZ they produce a plastic cap that has to be fitted and then mostly adjusted. This then is send away again they then make the silicone base and put the hair in this. When that is finished you will come back for the final fitting and cut, so it takes a while from when you first go there and when you get yor wig. Good luck.
    Regards Christel
  • LeslieAnn Butler

    Hi Di,your daughter is beautiful. I know it's hard on a parent of a child with alopecia. I wrote a book about it, "If Your Hair Falls Out, Keep Dancing!" I just wanted to say hello.
    LeslieAnn