I have 2 beautiful daughters and 1 son ,and my sunshine is my granddaughter ALYSSA ,and i cant forget my wonderful husband.
my hair loss started last year after a salon burnt my scalp.since then i have been diagnosed with a very aggressive form of TE and a very low ferritan level and possible diffuse AA or maybe AGA and i also have severe scalp pain and inflammation.I BELIEVE THE DOCTORS HAVE NO IDEA WHAT IS WRONG WITH ME.................
I know how hard it can be, Estella! I've had no hair at all anywhere for almost 30 years!
I wrote a book about it called, "If Your Hair Falls Out, Keep Dancing!" It's pretty upbeat and has lots of info in it plus personal experiences of other women.
I am here for advice and support...
Hugs!
Hi Estella,
I read your bio and realized you are probably around the same age as me. You have 3 children and one grandchild. I have 2 daughters in their early 20's. My oldest one got trauma induced alopecia after an accident. She started losing her hair slowly in her teens. I have a full head of hair and feel my daughter is stronger than me. It hurts to see her go through this hair loss, since it is so much of one's identity. But somehow she has found an inner strength. She is beautiful with or without hair. I am sure your children see you different than you see yourself. They know your personality, they know what you like or what you don't like. They see you as a beautiful woman with or without hair. You will always be beautiful to them. If you are losing more hair maybe try scarves.My daughter has found scarfs and hats fun accessories to work with. My daughter has always been good with "doing her hair" and now she is pretty good with twirling and knotting scarves. You are a role model for your children. Keep positive. People are more accepting and loving than we know. Peace.
Jean
Hi Estella! Thanks for the request. Lemme know if ya need to vent. Keep your head up. AU was a nightmare for me in the beginning but has made me so much stronger. Hope your having great weekend.
Have you managed to get your iron stores (ferritin) raised?
I wear bandannas most days...maybe they will work for you? I also wear caps/hats here and there but not as often. Do whatever makes "you" feel comfortable, okay? :)
Thanks so much Estella for adding me as a friend. Life is short...we all can use all the friends and support we can get.
Sep 4, 2010
I'm sorry to hear about your ferritin being so low. :( What type of iron supplement are you taking? Perhaps you need to try a different type of iron? How long have you been taking supplements?
God is good all the time. Despite what see or how we feel. We can just take a look around us and see how God works, Psalms 104.. just showed me how wonderful and powerful God really is. Its amazing he made all these things! what is hair to God. We should all find the beauty in him. I am having a rough day today, but I know when I walk out side I am bald not because of anyone but because of God who still loves me just the way I am. Enjoy your day!
Hi, Estella. Thank you for the friend request. I am currently attending the dental hygiene program at the HEC located in National City. Take care, Holly
hi! i have read your page, your case is the same than my situation, pain, shedding for long time, and beside you had the same hair like me before of that....i would like to know how many hairs per day are u losing right now? and why the doctor thinks you have aga? my hair is not growing back, but i dont think it was aga, i think the trigger which is causing me this is the same reason cause which not let my hair to grow back
hii!! i didnt have done the biopsy, the doctor thinks that it is not necessary because it is TE, and i am gonna have a scar for nothing, although i would like to have done it,,,,,it is the problem i have not idea which is the trigger....maybe it is something that i am eating like gluten or some deficiency although my analysis are ok.
why your doctor thinks it is difusa, arent you regenerating good?
which treament are you following? i am using minoxidil
Delete Comment
if you have a very agresive TE ....it could be normal that the new hair which is growing was so thin like baby hair like is happening to me...so maybe that is the reason which the doctor saw in the biobsy that you have diffusa (because you have a lot of thin hair and your roots are smaller than normal....it is because your roots were all in shock by the effluvium) what i want to say if you find the trigger your baby hair will start to get thick, but with the diffusa, not cause by effluvium, the hair never are gonna get thick again, our case is like when a person have cancer with the treatment the hair fall and when it grow back at first is baby hair like is happenig to us
the doctor told me that is normal to have a lot of baby hairs by the shock of the effluvium, it happens when your hair changes to telogen very fast when it not should.
i have been like that for more than a year, i had very good hair before of that ...now i still have hair you can see my scalp but i still have hair ...i have my hair cut like a boy now, and i shaved my hair 2 times.....i want the biopsy to know if it is effluvium o maybe areata diffusa because (some rare cases AREATA DIFFUSA is confused with effluvuim) but it is obvious that the doctor are gonna see diffusa like you as well by the shock of the effluvium like i said before, about monixidil i recommend you to read about it and to choose..it works a bit but maybe the shedding is worse i dont know how to explain..read about it
(3 text) with minoxidil the hair which have to fall are gonna fall faster(so maybe u see more shed, not my case) but it is gonna help to grow back your hair, but your hair are gonna still falling, it just help to grow back you hair, it will stop when we find the damn trigger :(.
p.s: i from spain so it is difficult for me to explain in english... and maybe you read somethings that you dont understand
hi!! i really dont know if my shed was worse when i started with that, maybe a littler more but not big deal, my hair was falling too much anyway, but if your scalp it not good because you have sore and inflamation you cant use that until you solve that, but why your scalp is sore? im my case a got too much pain but it is not sore just pain, with minoxidil if you have aga you only are gonna get baby hair, but if it is effluvium it is gonna shorten the regeneration time.....(if your new hair are gonna grow back in 6 month with minox it will grow back in 3 for example) your read that because they use minox for aga the most of time, but with effluvium it works of a different way because the problem is not the same , i want to say our roots are not almost dead like aga just in shock.
do you have hair still?? because if you are loosing 600 per day, you have to have still a lot hair .
which treatement are u following?
Hi Estrella, as usual all your pics are gorgeous. I have been busy working (paying them bills lol) but keep you in the back of my mind (and in my heart) always. Chao
I think you are beautiful as well... though I know its easier to hear than to believe some days. I can't believe this site even exists! Its so nice to know I'm not alone!
LeslieAnn Butler
How are you doing today?
LeslieAnn
Jan 3, 2010
LeslieAnn Butler
I wrote a book about it called, "If Your Hair Falls Out, Keep Dancing!" It's pretty upbeat and has lots of info in it plus personal experiences of other women.
I am here for advice and support...
Hugs!
Feb 2, 2010
Jean
I read your bio and realized you are probably around the same age as me. You have 3 children and one grandchild. I have 2 daughters in their early 20's. My oldest one got trauma induced alopecia after an accident. She started losing her hair slowly in her teens. I have a full head of hair and feel my daughter is stronger than me. It hurts to see her go through this hair loss, since it is so much of one's identity. But somehow she has found an inner strength. She is beautiful with or without hair. I am sure your children see you different than you see yourself. They know your personality, they know what you like or what you don't like. They see you as a beautiful woman with or without hair. You will always be beautiful to them. If you are losing more hair maybe try scarves.My daughter has found scarfs and hats fun accessories to work with. My daughter has always been good with "doing her hair" and now she is pretty good with twirling and knotting scarves. You are a role model for your children. Keep positive. People are more accepting and loving than we know. Peace.
Jean
Feb 11, 2010
Nicole
Feb 21, 2010
LeslieAnn Butler
Feb 21, 2010
Have you managed to get your iron stores (ferritin) raised?
I wear bandannas most days...maybe they will work for you? I also wear caps/hats here and there but not as often. Do whatever makes "you" feel comfortable, okay? :)
God bless!
Aug 19, 2010
Mary
I think we may have another meeting sometime in the near future.
Mary
Aug 19, 2010
Julie Koch
Aug 22, 2010
Lexi
Sep 4, 2010
Sep 9, 2010
Robbi
Sep 12, 2010
Sam Sam
Sep 15, 2010
Sam Sam
Sep 16, 2010
porcelinh
Sep 17, 2010
Fox
How are you today?
Sep 17, 2010
Fox
Sep 17, 2010
hannah sophia holland
How are you? x
Sep 24, 2010
anita martin rueda
Sep 28, 2010
anita martin rueda
why your doctor thinks it is difusa, arent you regenerating good?
which treament are you following? i am using minoxidil
Delete Comment
Sep 29, 2010
anita martin rueda
Sep 29, 2010
anita martin rueda
i have been like that for more than a year, i had very good hair before of that ...now i still have hair you can see my scalp but i still have hair ...i have my hair cut like a boy now, and i shaved my hair 2 times.....i want the biopsy to know if it is effluvium o maybe areata diffusa because (some rare cases AREATA DIFFUSA is confused with effluvuim) but it is obvious that the doctor are gonna see diffusa like you as well by the shock of the effluvium like i said before, about monixidil i recommend you to read about it and to choose..it works a bit but maybe the shedding is worse i dont know how to explain..read about it
Sep 29, 2010
anita martin rueda
p.s: i from spain so it is difficult for me to explain in english... and maybe you read somethings that you dont understand
Sep 29, 2010
anita martin rueda
do you have hair still?? because if you are loosing 600 per day, you have to have still a lot hair .
which treatement are u following?
Sep 30, 2010
anita martin rueda
Sep 30, 2010
Lori
Sep 30, 2010
Lisa M
Oct 9, 2010
Aliennation
Oct 12, 2010
Jo Jo
Oct 27, 2010
lyndsey tolson
Oct 28, 2010
Have a blessed Christmas, Estella! :)
Dec 2, 2010
dannii
Dec 3, 2010