I am the mother of an 11 year old girl with Alopecia. She was diagnosed when she was two years old. She has been taunted and made fun of at school and also deals with the stares of many who are curious. She currently has a locks of love prosthesis but it is two small for her and locks of love refuses to give her another one.
Hello and welcome, Lisa!
I'm so sorry for the negative experiences your daughter has been having.
Alopecia can be hard. I have had it for about 30 years. Let me know if I can help with advice or support. One thing that you might be interested in is my book, written for women and girls, called "If Your Hair Falls Out, Keep Dancing!" (It just won two national awards!) It has a lot of good info in it, it can answer many questions, and it's a fun read, too. You can find out more on my page. It's available on Amazon.com, and on this site under "Bookshelf."
Let me know if there's anything else I can do! I am here to help.
LeslieAnn
Mary
Sep 24, 2009
LeslieAnn Butler
I'm so sorry for the negative experiences your daughter has been having.
Alopecia can be hard. I have had it for about 30 years. Let me know if I can help with advice or support. One thing that you might be interested in is my book, written for women and girls, called "If Your Hair Falls Out, Keep Dancing!" (It just won two national awards!) It has a lot of good info in it, it can answer many questions, and it's a fun read, too. You can find out more on my page. It's available on Amazon.com, and on this site under "Bookshelf."
Let me know if there's anything else I can do! I am here to help.
LeslieAnn
Sep 24, 2009
LeslieAnn Butler
Hugs!
Sep 25, 2009