Lo

Female

Pittsburgh, PA

United States Minor Outlying Islands

Profile Information:

Relationship Status:
Married
About Me:
Lost eyebrows in 2010-2011. Had a spot of hair missing above each year - and was diagnosed in 2011 with alopecia areata. In January, 2015, I questioned why the spots were progressively getting bigger above my ears - and progressing to my temple area - and finally the doctor said we should test to see if it is scarring alopecia. In January, 2015, I was diagnosed correctly with FFA. I'm on Celcept, Actos, and Finasteride.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

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  • Chris

    Hey Lo,
    Yes, roughly 2" in probably more like 2 1/2, three years. I was in denial for about a year;). My loss started in the front. It thought it was a few pimples that wouldn't go away. Then I thought it was a fungal, or bacterial infection. My regular doctor was giving me antibiotics to clear it up. Finally I went to a dermatologist and had a biopsy. I didn't connect what was happening to my eyebrows to what was happening on my head. Then one day I looked at my arms and noticed, "Hey,ALL of my arm hair is gone! It's amazing how I was able to ignore what was happening for so long. I'm at a crossroads now where, I'm not sure what I'm going to do with my hair. In the not too distant future, I'm going to need a wig, or hairpiece. The loss rate seems to cycle on and off. It's been ramped up as of late. I think it is connected with my allergies, which are in high gear. I've always noticed big jumps in loss in the spring/summer. Who knows?
  • Will Be Healed

    Yes, it was helpful to some degree. I had some small bald spots fill in that we're on the top of my head. For some reason it hasn't helped my sides. Yes, I believe that God will heal and we just have to leave this disease in his hands. It is hard to stay focused on God when the visual is there everyday, but I continue to say to myself if Jesus can heal blindness and leporcy, Jesus can heal me with my continued strong faith. We need to pray for each other since there is power in prayer, especially when two or more pray together. Thank you for sharing your faith with me. Will pray for you Lo.
  • DeniseC

    Hi Lo

    It's really clever. Have a look at this .... http://www.lucindaellery-hairloss.co.uk/ffa.php  My FFP is nowhere near as bad as this. They attached the webbing - the intralace system - by bringing my own hair through it and (sort of) knotting it to new hair. That anchored the system. They did this all the way round, then attached a complete section of new hair - a 'natural' parting - which completely covers the bald bit at the front. I have had it for exactly two weeks, and now I am used to it, I LOVE it. I cannot tell you how different it makes me feel. And no one knows (other than those I choose to tell, of course). Lots of people have commented on how well I look and how good my hair looks - a new colour? A new cut? YEAY!!!! have a look on the website which explains it all (far better than I can).

    One thing going to them made me feel was okay about the condition. I had so many months/years of feeling negative about myself and how I looked, and they normalised the whole thing. So now, if I choose to tell someone why I look different, I will, and without any sense of shame or embarassment. Because, guess what? We didn't choose to have this condition, and it is bad luck, nothing else. And absolutely nothing to be ashamed of.

    Having said all of that - and firmly believing it, too - I am unbelievably pleased to look like me again!!!

    Denise x