Susan Lloyd-cowley

worcestershire

United Kingdom

Profile Information:

Relationship Status:
Married
About Me:
Well it's really all about my little ray of Sunshine Owen. my 11 year son who has aa.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

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  • Margie

    Hi Susan, Reading your message just about made me cry. I soooo know what you are going through! Watching my son going through this has been one of the hardest things in my life. As a mom we feel we should be able to make everything better. When we can't it really gets to us. One of the most powerful things we did for my son was to open up his situation to everyone. No hiding and feeling ashamed. The school had an assembly for the grades that he shares a playground with. They explained what he is going through and how no one should ever tease. They then told the kids what to do it they ever heard someone talking negatively about the situation. He was given permission to wear a hat at school but he doesn't want to. He says that everyone know so it's no big deal. Having brought this out in the open has empowered by son tremendously.

    Also, keep coming to this site for your own health. I don't know how I could have made it through this situation without the support I found here. And always know I would love to help in any way I can (I can be a great shoulder to cry on :) ) You and your son are in my thoughts and prayers. Margie
  • Cherylnz

    Hi Susan,
    Sending you both big hugs.
    Please don't ever think that you are causing his Alopecia. You sound like a wonderful Mum and your doing a great Job. You both will get through this fine. Yes there will be differcult times, but there will be more good than bad. It would great for both of you to meet others with Alopecia. There maybe a support group near to you which may have children around his age. It certainly helps to chat to others on here.
    Back when my Alopecia started very little was known and my parents took me to many Doctors. I had all sorts of treatments but nothing helped. I have learnt more about Alopecia in the last 4-5 years with having the internet.
    Having wonderful support groups like this has really given me much more confidence as I have only ever met 1 other Lady with Alopecia and that was when I ordered my 1st Vacuum Wig over 22 years ago. I think it would have been easier if I had known someone when I was going through my school years (especially the teenage years). I was lucky to have great friends, but they don't really understand what its like.
    Life has a way of giving us all sorts of challenges and I'm sure that makes us a better and stronger person. We are here to laugh, cry, help and support each other through the good and bad.
    Take care
    Cheryl
  • Cherylnz

    Hi Susan,
    Rude people! yes unfortunately there are people out there like that.
    I think I would much rather they come over and ask than talk or whisper thinking that we don't know what they are doing.
    I'm glad it didn't spoil your day.
    Its spring here so getting warmer, although over night there was a bit more snowfall on the mountain-tops. We have a long weekend here (3 days, it's Sunday night 10.43 pm) Monday is a holiday, so its nice not having to rush and get everything ready for a normal Monday.
    Take care
    Cheryl