I have had Alopecia totalis for the past 25 years since before I got married. My family has been very supportive during the loss dealing with it until present. For the pas 25 years I've never ventured out without my wig, mostly I was worried of the reaction of other people and how it will affect my girls. Now both of my girls are out of high school and both in College, we all agreed that its' time to retire the wigs for the weekend. I think that awareness is very important, because people do not know about Alopecia. I'm ready to do whatever I can to bring awareness to the world about this disease,among the adults but especially among the children.
Hello and welcome, Antoinette!
Yes, they are getting closer to a cure, and genetic prevention. I'm not sure it will help those of us who have had it for this long, though because our follicles have most likely become dormant after all this time (I've also had univeralis for about 25 years).
LeslieAnn
hello antoinette
thank you
it helps me to see all the woman placing a picture with a bold head. It is beautifull.
hopefully one day you will see a picture of me . That would be a gigantic stap for me .
Thank you for your comment.
I really appreciated it. I would like to share this
I am a mom of three children, the oldest one is 7 years. i had a scarf on my hair a couple of days and my daughter told me mom 'you should come your hair than you can take it of. otherwise you will lose your hear. if she only knew ....I laughed and sad yes you are right.
I do have a long way to go. my first step is telling my family that i have alopecia. phhh
Astrid
JeffreySF
Welcome to Alopecia World.
Jeffrey
Aug 7, 2010
Roger
Roger.
Aug 8, 2010
LeslieAnn Butler
Yes, they are getting closer to a cure, and genetic prevention. I'm not sure it will help those of us who have had it for this long, though because our follicles have most likely become dormant after all this time (I've also had univeralis for about 25 years).
LeslieAnn
Aug 8, 2010
Mary
Mary
Aug 11, 2010
JeffreySF
I love you name. Is it French?
Bon Sois!
Jeffrey
Aug 11, 2010
JeffreySF
All is good here thanks.
I hope all is good with you too.
Jeffrey
Aug 12, 2010
Tiffany P
Aug 15, 2010
Sherry Washington
Sherry
Aug 18, 2010
Linda
Aug 29, 2010
astrid
thank you
it helps me to see all the woman placing a picture with a bold head. It is beautifull.
hopefully one day you will see a picture of me . That would be a gigantic stap for me .
Sep 2, 2010
astrid
I really appreciated it. I would like to share this
I am a mom of three children, the oldest one is 7 years. i had a scarf on my hair a couple of days and my daughter told me mom 'you should come your hair than you can take it of. otherwise you will lose your hear. if she only knew ....I laughed and sad yes you are right.
I do have a long way to go. my first step is telling my family that i have alopecia. phhh
Astrid
Sep 3, 2010