Loraine and Sammy

Female

Melbourne

Australia

Profile Information:

Relationship Status:
Married
About Me:
My daughter Sammy, 11, has had recurring alopecia areata since she was 2. She is a happy confident girl....I am wanting to find all the tools I can to enable her to always believe in herself
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

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  • Cindy

    Hi Lorraine, I don't believe the treatment you are referring to is the one Sam is doing. If you google SADBE you will read the info on it. It has been used to treat warts. Basically, after a skin test to determine your body's response a solution of acetone is applied to a small area of the scalp. Sam has had an interesting journey with it. The body in turn produces a response in the form of a rash and can be itchy. Sam goes to a top rated Children's Hospital in the USA. The doctor said it is safe for long term use. She did not advise any form of steroid treatments and you need to be careful because it can thin the blood. She recently allowed us to use a cream on her eyebrows twice a week. That coupled with the treatments is producing the return of her eyebrows. This treatment works the entire immune system. My advice to you is that if you are interested in pursing this treatment that you find a skilled doctor and don't allow the doctor to put the squaric acid on a large area of the scalp to begin. The irritation can be uncomfortable, but it only lasts about 2 days. If you want more info after reading up on it let me know..Have Sammy contact my Sam she has her own page.. I have pictures of various stages of regrowth on my page. Sam's hair is alot longer now. Good luck!!
  • Cindy

    Hi Lorraine, have you had any luck with inquiring about the squaric acid?
  • BTB (John)

    Hi Lorraine my wife Pat (see friends list) has been getting wigs from China for years and has had no trouble she will be more than willing to chat to message you with any information you need John