Jen

Female

Profile Information:

About Me:
Diagnosed in 2012 with frontal fibrosing alopecia. In 2007 my Mom passed after 8 month illness and in 2011 my husband passed after a 3.5 year illness. Both had cancer and I was the primary caregiver for my husband secondary caregiver for Mom. I noticed thinning hairline in 12/2010 but did not pay much attention since I was busy with my husband. Two months after my husband's death, I noticed my first bald spot on the hairline. I went to the derm who did the injections and I developed more bald spots around the temple to the ears. I am frustrated with that and have decided to stop the treatment since I do not want to lose more. I know that nothing will stop the hair from falling and so I am concentrating on getting hairpieces for the bald areas. If anyone has been successful with this please let me know.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

  • SPIKE

    Hi Jen. Left you a private chat.

    Oct 19, 2013

  • Veronica (Renata)

    Hi Jen it sounds like we have a lot in common, I would live to talk to you if you want to send me an email at renatamazzaferro@rogers.com and I will give you my number

    Oct 21, 2013

  • LeslieAnn Butler

    Hello and welcome, Jen!

    How are you today?

    Leslie Ann

    Nov 2, 2013

  • LittleSadEyes

    Hi Jen

    I am young yes but I am also going Ito early menopause.. I think maybe there is some hormonal relationship between the disease and menopause

    Jul 5, 2015

  • LittleSadEyes

    Jen did you develop ffa in your 20s? Just seems like the pattern of loss fits and I also am losing lashes, brows and I have noticed arm hair. U hairline has receded so much. I get such an itchy scalp and sore eyelids. It just fits :(

    Jul 6, 2015

  • Wyobalance

    Hi Jen,  I'm in Nashville at the moment as my daughter will be having surgery.  I am available by phone after Thanksgiving 307-635-7898 (mountain time).  You are also welcome to email me at whitepov@gmail.com.  I look forward to talking to you!

    Nov 17, 2015