DesertAngel

Female

Grey Street

United States

Profile Information:

Relationship Status:
Married
About Me:
I am married and the mother of three. I also have scarring alopecia and still haven't told my husband...Oh, he knows that something happened the last time I went to the salon. And he knows that because of what happened I'm now wearing a wig. But I just haven't gotten around to telling him that I was diagnosed, in July, with scarring alopecia. I know that I'm a terrible wife.

I'm still in denial. I still haven't really looked at that balding, bumpy patch on the top of my head. I haven't taken any pictures. I haven't had my 'melt down' cry yet. The tears just leak out. I'm afraid. Oh, he wouldn't care if I wore a multicolored wig with a leather chin strap! I'm afraid that once I tell him, my diagnosis is final. Do you know what I mean? Once I say it out loud to some one other than me, I have to accept that I will never again go to a hair salon.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes

Comment Wall:

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  • Tiffany

    I know exactly what you mean !!!!!!

    Oct 8, 2008

  • Avis

    Hi DesertAngel! You are definitely not alone. My hair loss story started some 15 years ago. There have been ups and downs. For me, there came a day when I was tired of getting the shots and using the ointments and creams twice a day. So I just gave up and let my bald spot in the top of my head grow. Then when I couldn't cover it up any more or wear my famous ponytail, I bought my first wig. That was about 5 years ago. I recently shaved my head. I was tired of having to deal with the long hair on the sides and nothing on top. I feel better about myself right now but each day is a journey. I still wear a wig in public. I am torn between wanting to go gloriously bald one day and wanting to get a lace front wig the next. My only advise to you is don't give up on your hair unless you really want to. Follow your heart. It's ok to be sad, angry, frustrated. Your hair does not define who you are. You will always have the peple that love you.

    Nov 19, 2008

  • Paula

    Hi DesertAngel,

    My nickname is Angel also. I have had Alopecia Universalis since I was 5 years old and I am now almost 44. I agree follow your heart & the support you will get from your husband once you tell him will probably do a world of good and hopefully we all can also help be of support for you no matter what. Most all of us still get emotional even those that have had it for a long time. Angel Paula

    Dec 6, 2008