Evie and mom Gail

Female

Ottawa, ON

Canada

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About Me:
My daughter Eva, 5, has has Alopecia Universalis since she was 10 months old. She just got her first wig, but isn't very interested in wearing it since it is hot and itchy. Normally she does very well, but there are days when she feels like she is the only bald kid in the world. We haven't met anyone yet with alopecia. Her school seems fairly supportive, although there can be comments some days that upset her and there are times when she wishes she could have big princess hair. Would love to meet others in Ottawa, Canada dealing with alopecia.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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  • Jules1984

    This website is not the easiest to navigate through... I will definately give you a call sometime next week and schedule something for the weekend. Alexa hasn't lost all her hair yet.. but at the rate it's going, I wouldn't be surprised if she did. She lost about 50% so far and has some regrowth in the areas she lost first... but she is still losing more and more. I'm debating right now whether or not I should shave her head. We can somewhat cover the bald areas because most of the loss is on the sides and on the bottom of her scalp. She is a little shy but is used to playing with children who are older than her since all her cousins are older. I want her to get used to seeing people expecially children who are bald because I'm afraid she might end up being bald herself. She comments that Caillou (her favouritte show) has no hair and that he just has a head.. so I'm trying to explain to her that not everybody has hair and that everyone is different and looks different but it doesn't mean that they are bad or scary. I don't know how to explain to a 3 year old about this stuff... but I'm trying my hardest. Anyways... I'll give you a call soon... Happy birthday to your daughter!! Looks like the weekend is going to be really nice!

    Jul 6, 2011

  • Jennifer Krahn

    Evie is beautiful!!! I was just passing by the photos and had to comment. She looks like she has such a fun-loving spirit and that smile!!! She is GORGEOUS! Wishing you well and hoping you are getting as warm a summer there in Ottawa as we are here in Winnipeg! (finally) Ps - My daughter loves her butterfly face!
    Jenn

    Jul 7, 2011

  • Jennifer Krahn

    Just saw your post in Canadians with Alopecia...there is an organization CANAAF in Canada and I saw that a couple years ago they had a meeting. It would be great to get a NAAF conference for Canadians going up here. I just came back from Los Angeles (missed the conference to get back to my kidlets) but saw for the first time more people with alopecia...it was so nice to see! I saw how empowering this was for everyone. I know there is an organization called CAPS (I think) where it is a camp for kids with alopecia (How awesome)...I'll try to find out more and message you.

    Jul 7, 2011