You are very welcome. I do a CAP meeting here in MA. It is comforting for the kids to know they are not the only one. I know how upsetting it can be to see clumps of hair come out. It was much harder on me then Sam. We are fortunate that we found something that has worked for her and most of her hair is back now. I know she will be disappointed if her hair falls out again but I think she will be fine. Have you gone to a derm yet? Cindy

Hi, that is awful. Can your doctor recommend a derm to go see. Don't be afraid to go to another derm. I kept taking Sam to a derm until I found one that would really do something besides appease me. It is common in some cases to have the hair regrow as it falls out. I know of a girl in my town who has that. I just think there are derms out there that don't believe in treating this condition because the science of it is a mystery and there is no full proof cure. Just keep smiling for your daughter. It sounds like you are doing everything you can. Have you contacted CAP yet? Since they are our of PA Betsy maybe able to recommend a derm for you or direct to you to someone in the area that can make a recommendation. Overall, how is your daughter feeling? If she does email, Sam has an account and she loves to write to people. Cindy

HI Aprille, I have been asked to have you to read a post on my page from Lisa and Chloe.
How are you?