Jules Australia

Female

Ipswich Queensland

Australia

Profile Information:

Relationship Status:: Married
About Me:: I am 56 and have been diagnosed with lichen planopilaris & frontal fibrosing alopecia. I am happily married with two adult children.Was diagnosed July 2013, but extremely distressing symptons of burning tenderness itchiness creepy "crawling" scalp sensations started Oct 2012.For 2 years prior to that I had wierd hair structure/texture changes (althouh I had naturally wavy/curly hair it started growing out kind of kinky esp over top & in front) before the hair recession/thinning & scalp pain began.
Do you have alopecia?: Scarring alopecia
Are you age 18 or older?: Yes - I am 18 or older

LeslieAnn Butler

Hello and welcome, Jules!

How are you today?

Oct 27, 2014
Rosie from Brisbane

Thank you very much for your words of aupport Jules. Where will I find that group you referred to? Is it a Facebook support group? And can you recommend a specialist in or near Brisbane (preferably Southside ) who can assist? I have been to a dermatologist who said he is 95% sure I have FFA and will do a biopsy for confirmation next visit, but will gladly attend a FFA specialist. Cheers.

Dec 30, 2017