Alopecia World
Gina Choate
Female
Tahlequah, OK
United States
Profile Information:
- Relationship Status:
- Married
- About Me:
- There was never a time when I did have hair. The alopecia that I have is a genetic condition starting from birth. Several people in my family have it. Basically, one has a 50/50 chance of inheriting it from a parent.
I've always tried to hide it, and childhood was horrible. Things have changed alot since then. Now I have 3 beautiful children. My daughter, Boniblu, is 6 yrs. and has alopecia. I have twin boys, Max and Cash who are almost 4 yrs. Cash has alopecia and Max does not have it. Boni is nothing like I was at that age. She is strong, confident, and outgoing. She hates to wear her wig, so mostly she wears a hat or bandanna. She just started kindergarten and loves it. I let her teacher know before school what to expect and how to help her. We also gave her a book about alopecia to read to the kids to help them understand it better, and took pics of Boni as a baby. The hardest part is not knowing other people with alopecia. We live in a small area and you just don't meet other young people with alopecia.
Having children has helped me so much. How? Well, I can't hide it anymore for one thing. When people ask, I tell them Boni has alopecia and she inherited it from me.
Well, I could go on forever with my story. Want to know more - just ask.
ps there are lots of types of wigs out there. Synthetic, human hair, cyberhair, semi-permanent. I've tried almost all of them, except cyberhair. Give me some feedback, what do you like best? - Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes
- Your Website (Leave blank if you don't have one):
- http://ginachoate@sbcglobal.net
carly
Sep 10, 2008
Cindy
My name is Cindy and I have a 6 yr old daughter with Alopecia. I think her hair loss has been harder on me then her. She wears a wig and does not seem to mind it. Her hair started growing in June, but we still have a long way to go. I see that you tried most kids of wig, but cyberhair. Sam's first wig was an Amy Presence Cyberwig. The hair was not bad, but it was high maintanace. Sam recently got her first wig for the hair club for men and she loves it, mostly in part because it gave her, her old look back. How are your kids dealing with their Alopecia. Samantha has really embraced it and is unphased. I am sorry to read that two of you kids are dealing with. You all must be a great support system for each other. take care, Cindy
Sep 11, 2008
Christina
what finds kids you have!
say hello too them from me!
Christina
Nov 17, 2008