Yep I know what you are going through. Sometimes I hate the no eyelash/eyebrow part.

Hope the day is a good one for ya.

Wow, I didn't know there was anyone else out there with Ulcerative Colitis and AU. I'll let my son know he's not alone (although he seems to be growing hair again so maybe we can check off the AU - at least for a while).

It was only after trying to discover why my son's hair fell out that we found out he had Ulcerative Colitis. At first they thought the hair loss was because of the severe anemia that the UC had caused, but after the anemia was taken care of he still didn't have hair, we got the AU diagnosis. From the beginning, though, the focus had been on healing his insides and dealing with the UC. The dermatologist just kept telling us that his insides were much more important and take care of that first. After steroids, almost a year of immunosuppressants, the colonoscopy showed his insides seemed to be much better and his hair has started to grow again. Now the doctor is trying to get him off of the immunosuppressants and on to a maintenance drug Pentasa. He's not tolerating it well so they have restarted the immunosuppressants and is continuing the Pentasa in hopes of achieving and maintaining remission of the UC - eventually without immunosuppressants. My son was content with the immunosuppressants and thought they were responsible for his hair growth, so he's not to eager to stop taking them, but I'm looking at some of the long term side effects (as well as the day to day risks of a compromised immune system) and would like him off of them even if it means his hair will fall out again.

Since Ulcerative Colitis is also an autoimmune disease and I'm sure that it is related to the alopecia. I just hope the treatment for one is equally successful for the other. He can live without hair (although as a teen he may not think so), but he can't live much of a life if the Colitis is constantly flaring, so I'm hoping that the treatment we eventually find for the UC will result in hair growth as well. If so, life will be good again!