Alopecia World
Orbit
49
Southwestern Ontario
Canada
Profile Information:
- Relationship Status:
- In a Relationship
- About Me:
- Smooth and silky! I have AU (Alopecia Universalis, I grow no hair anywhere) and have had some form of Alopecia my whole life. These days I try to live my life with purpose, kindness and compassion. I know that growing up with AU has made me a more sensitive and caring person. The fact that I am bald doesn't deter me in any way. The fact that I have no hair is just one of the reasons that I am special, I have accepted it and am happy to help others going through the same thing. I am Happily AU Naturel!
Having this condition is not really as bad as it seems, honestly. I am so used to now I don't know what I would actually do if I did grow hair! The thought of shaving my legs scares me, the extra maintenance and upkeep, oh the horror! Being soft and smooth has its benefits! I choose to mostly wear wigs and I have a lot of fun with it. I've completely embraced the my versatility and I like to be chameleon like. Day to day I am a redhead, and I wear a colour that is very close to my bio hair. I do like to spice things up with different colours and styles. Long and dark one day, short and brown another, curly and blonde, you get the idea. Sometimes it looks great, but next to my shockingly pale skin I think the red is the best. I haven't really got the nerve to wear my bald look out in public (mostly due to the fact that I have big ears!) but do so often around the house especially for strenuous exercise.
I know there are fellow alopecians on here with lots of questions about my wigs and just whats the deal with them?! No mystery, just find something that suits you and work with it. Do research, inform yourself, shop with a trusted friend, and most importantly don't get discouraged! Look outside the box and trust in yourself! You are the most important person in your life, so give yourself break! Remember that CONFIDENCE CAN BE FAKED! All you have to do is hold your head high (bald, covered, with a wig whatever) and SMILE! You'll start to beleive it and so will others! I guarantee that your positive energy will be contagious! I'm happy to answer any questions and help in any way that I can!
A bit more about me, I am a second generation Canadian Leathersmith who owns and runs my own business. I wouldn't have it any other way! I'd like to get a chance to explore more of my artistic side when I get a little spare time. I love to paint, do sculpture, work with reclaimed materials and recycle stuff into art. While I am not musical myself, I really enjoy a whole range of music from all over then world. I like to sew, and do anything that keeps my hands and brain busy. I think its important to honour our heritage (I am a mixture of Scottish, Polish and German decent). I thinks its very important to keep the dying crafts alive. My grandma taught me to crochet and my nana taught me to knit, both of which I love to do. In addition to that I have my own strange style of embroidery and beadwork. I like to doodle and scribble down poetry. I try to continuously educate myself, I'd be afraid my brain might turn to mush otherwise! All outdoor pursuits are of interest to me, specifically I most enjoy: Canoe back country camping, hiking, biking, gardening, sailing, and snowboarding. I practice Yoga and meditate often. I like to exercise to blow off stress. I enjoy walking my Portuguese Water Dog. I'm concerned about the state of our planet and try to implement "green" alternatives whenever I can. I try consume as many organic foods as possible. I'm a big fan of the "Slow Food" movement. I like to garden and love spending time in the forest. I am a vinyl junkie and have a huge LP collection - I just love the warm sound of records! I'm a pinball junkie, I admit it. I really enjoy a nice glass of red wine or single malt scotch. Friends tell me I'm just one of the guys.
~~~~~~ I am Happy, I am Healthy, I am Whole and Complete ~~~~~~ - Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes
Dave
Jun 19, 2010
PATTY
Do you use rene of paris wigs???
Yesterday I have ordered my first wig.....Bradi by rene of paris. It's a new world for myself.
....It's so difficult......
I'm going in fitness center 5 days a week.....I will
go also with my wig...If my wig dont move.....
I need all advice about fasten fix, wig.......
I'm a beginners.......
Jun 23, 2010
Dana Kozlowski
Jun 23, 2010