Kathy

Female

Salt Lake City, Utah

United States

Profile Information:

Relationship Status:
Married
About Me:
I have had AA for 7 years. I started out with just a small spot and went to the dermatologist who diagnosed me with AA. I had never heard of the disease and never knew anyone with it. I started having cortisone injections in the scalp monthly. Slowly it progressed into more and more spots. I have to tell you that I felt like we were just chasing the spots around my head. One would grow back some hair and another one would lose the hair. Every month I left the Dr.’s office feeling very frustrated plus the shots were painful. I remember giving a speech at a Family Reunion (100 plus people) and the wind started blowing and I just sat and prayed that my hair wouldn’t move because of all of my missing hair. I began to hate the wind and my hair.
Two years ago I decided to start wearing a wig. What was funny is that no one noticed! My family knew, but I had to tell my friends I had a wig on.
After reading about others who had shaved their heads, I finally got the courage to shave my head last summer. I was sick of the disease being in control of me. It felt good in a strange way. I still wear my wigs most of the time.
It has been a journey, and one that you all so courageously have been on. I love to read the encouraging words here. Life seems to just keep getting better!
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall:

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  • LeslieAnn Butler

    Hi Kathy!
    Yes, you need a prescription for Lumigan. Do you have a dermatologist who is knowledgeable about alopecia? You can get it from her/him. It's very new, cutting edge so not all derms may know about it.
    Hey! Tell me how you like the book, okay? I would love to know!

    Jun 21, 2008

  • Shannon

    Thanks for your kind comment, Kathy. I wasn't sure if you were active on this group or not but I'm glad you commented back. Yes, shaving your head can be liberating in many ways. It is not easy or fun but it is always good to look at the bright side. Thanks for saying that I have helped you in some way. I sure hope so. If we can't learn from our trials and help others then we are wasting a lot of suffering. :) I hope to get to know you better. Take care, Shannon

    Feb 5, 2009

  • Cheryl, Co-founder

    Hi Kathy, your comment really touched me. You mentioned that you don't post much, but our wedding was "post worthy". Thanks alot my made my day! Cheryl

    May 1, 2009