Elle
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Big impact on life

Started this discussion. Last reply by Susan Jan 22, 2020. 14 Replies

I dealt with AA since 4th grade and it was pretty hard.  After the first few years, most of the time I was lucky and it wasn’t too noticeable, but then I got AT - no eyebrows, not many eyelashes and…Continue

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Susan replied to Elle's discussion Big impact on life
"Sarah, if you ever decide to try wigs again you may be surprised to discover that you can buy an open weft, lace front synthetic wig and cut out the back tabs and replace those with 1.5" of 1/2 inch, braided elastic. This is what I do (see my…"
Jan 22, 2020
Sarah Reade, MD replied to Elle's discussion Big impact on life
"I cannot NOT wear a hat or wig. My head and scalp get way too cold. It sweats under the wig, but that is better than being cold. One time I fell and my wig flew off my head!!! Was may face red!!!! Sarah Reade, MD"
Jan 22, 2020
Spuddy replied to Elle's discussion Big impact on life
"hank you you Jeff"
Jan 21, 2020
Spuddy replied to Elle's discussion Big impact on life
"Hello  I am 59 and smooth as heck and looking good. ”kind of like like Mr. Clean with tattooed eyebrows”..lol text me 925-918-1967"
Jan 21, 2020
Spuddy replied to Elle's discussion Big impact on life
"Hello  I am 59 and smooth as heck and looking good. ”kind of like like Mr. Clean with tattooed eyebrows”..lol text me 925-918-1967"
Jan 21, 2020
TurboK replied to Elle's discussion Big impact on life
"I completely understand. When I went AU, I quit riding my motorcycle and driving my convertible. I was happy to leave NC, and move back to the Upper Midwest, but I didn't like the reason that made the move necessary. I was forced to move…"
Jan 21, 2020
JeffreySF replied to Elle's discussion Big impact on life
"Club Spud!  Sounds like fun! On the more serious side. We all know how hard this disease can be on an emotional level Hugs, Jeff"
Jan 14, 2020
Caro replied to Elle's discussion Big impact on life
"Hi there Elle,  I really get where you are coming from.  I got AU in my 40's (about 6 years ago) and found it very very difficult at the time but with the support from the ladies in Alopecia Ireland and my family (especially my…"
Jan 14, 2020
Sarah Reade, MD replied to Elle's discussion Big impact on life
"Elle, I was in my mid 50's when my hair started to fall out. It started with just two round patches in the back. Because my hair was long, I could pull it back and cover the bald spots. As time went on, more and more bald spots appeared until…"
Jan 13, 2020
Susan replied to Elle's discussion Big impact on life
"I sympathize with you. The others here have already given great tips and strategies for "going out in the field". I, myself, go snorkeling, swimming in the ocean, pool, etc. while wearing either a shorter wig wearing a bandanna in a skull…"
Jan 13, 2020
losing_it replied to Elle's discussion Big impact on life
"Hi Elle, I fully sympathise with your sentiments, I have a very similar background to you both in terms of the activities (I worked as a pro scuba diver for many years) I participate in and my general lack of not bothering with makeup etc. Since I…"
Jan 13, 2020
Flbeachchic replied to Elle's discussion Big impact on life
"Elle, Everything you're feeling is valid.  I don't know if it's something you'll ever completely accept but try not to allow it to keep you from living life to the fullest.  What's helped me is finding people with…"
Jan 13, 2020
Spuddy replied to Elle's discussion Big impact on life
"Hello, Mt name is Danny and I my immune system went nuts 4 years ago and at the age of 50 I lost every single hair on my body. I feel you struggle and I can only partially fit into your shoes.  It is easy for me to tell you that you need to get…"
Jan 13, 2020
Volker replied to Elle's discussion Big impact on life
"Greetings.... Send good w to you... "
Jan 13, 2020
Elle posted a discussion

Big impact on life

I dealt with AA since 4th grade and it was pretty hard.  After the first few years, most of the time I was lucky and it wasn’t too noticeable, but then I got AT - no eyebrows, not many eyelashes and wear a wig.  I don’t think of myself as a vain person, never wore much makeup or spent much time on my hair etc.  But since getting AT, I’ve barely gone swimming, scuba diving (which I love) much less felt open to dating.   I don’t want to go to a gym or take fitness classes where is sweat.Maybe…See More
Jan 6, 2020
Elle replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Thanks Superduper, interesting. I’m not in ny and looks like the Rx costs nearly $50,000/yr so not available outside of a clinical trial. "
Jan 2, 2020

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About Me:
I first had alopecia areata at age 10. It was difficult for several years and then by college it had mostly stabilized. Then at age 43, several days after a traumatic loss, my hair began falling out noticeably. After two months or so, I'd lost all the hair on my head. After three months, I began losing my eyelashes and eyebrows.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

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At 7:48pm on July 1, 2011, LeslieAnn Butler said…
Hello and welcome, Elle!
How are you today?
Leslie Ann
 
 
 

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