June 2014 Blog Posts (28)

My story

March 2013:

I literally woke up one morning and got ready for work and while brushing my hair I noticed that my brush felt strange on the right side of my head right behind my ear. I started feeling the area and felt that there was NO hair in that entire section. I frantically moved my hair aside and looked at it closely in the mirror. There was about a 3 inch rounded section of baldness. I immediately began to cry and wondered what was happening to me.

I didn't know what this…

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Added by Stacey on June 10, 2014 at 11:00pm — 3 Comments

Strange regrowth

I call it strange as it's strange to see. I first noticed that was some regrowth towards back and side of my normally 99.9% bald head (some reason I have always kept a very small patch of hair right at back of my head I never shaved off).

I ran my hand over my head and felt hairs never felt before. I couldn't see them in the mirror so took a photo and yep there was fine hairs appearing towards back and sides. I wasn't going to get too excited as I've seen this happen a number of…

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Added by KFlame on June 8, 2014 at 5:30am — 1 Comment

Waiving the white flag - my surrender to AU

I've been through so many stages of this disease in the past 12 months.  And each has been harder to accept and deal with than the one before.

First, last summer, I watched my little soul patch be whittled away to nothing.  But it still seemed to be locally confined to my face.  I hated the random patches where whiskers still persisted, and explored permanent removal of lingering hairs and endured hundreds of shots, but the fight was a losing one.

Then, this January, I was…

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Added by Schocker on June 6, 2014 at 3:30pm — 2 Comments

Regrowth

I have been experiencing a great amount of regrowth lately and have come to realize that after all my praying and wishing to have hair I don't really want it. I have lived my whole life without hair and it just seems alien for me to have long hair. I realized that I actually prefer being bald to having hair. I am actually scared to have hair. The idea of no longer being bald scares me. I do not want my hair to grow back in I want to stay the same.  I mean it is exactly what a lot of us have…

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Added by Jessica Hoschouer on June 6, 2014 at 2:00pm — 2 Comments

Trying to find a swim wig

Lost my hair in 3 weeks

Never saw it coming

Now it's gone

I was in disbelief and shock

I could not believe I was actually in a wig store

Those where places I used to to just drive by

I was looking for remedies

What will I do when I have to take off my neff Bennie?

How can I swim and expose my scalp?

I ordered a swim wig from hip hats with hair

The owner Christine was compassionate when I discovered that the piece just wasn't a good fit for… Continue

Added by Eneri on June 5, 2014 at 10:54am — 1 Comment

Caring for non-synthetic wig

Hi there: We have a question about the best way to care for a natural (non-synthetic wig).  My sister has conflicting opinions from the two different places where she has purchased wigs and has them cared for.  One place says the wig should not be blown dry, but should dry naturally - the other place says they have a special wig dryer which they use and does not damage the wig.  THe problem is that the wig must also have alopecia because the hair is beginning to fall out. . . The place where…

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Added by Concerned Sister on June 5, 2014 at 12:05am — 2 Comments

Bald head

Hi
Anyone know what to do for bald head color not matching face color? Makes my baldness stand out so much more.

Added by Kat on June 3, 2014 at 6:07pm — 19 Comments

Anniversary of shaved dome

Three years ago today, I finally got my head AND sideburns shaved off, just to see what it was like. Very free-ing, kind of exotic, funny. What the heck, eh? I spent parts of that summer with nothing on my head for road trips or at home, and am grateful for the understanding friend who helped me go through that first process. Even though I still wear wigs to work and a funky cloth hat at other places, I intend to go wigless at my alopecia support group meeting today…

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Added by Tallgirl on June 1, 2014 at 12:30pm — 3 Comments

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