September 2008 Blog Posts (111)

Kind of sad life is returning to normal after Hurricane Ike

This may sound crazy, but I'm kind of sad life is returning to normal after the hurricane that just hit Houston. Please don't get me wrong, I wouldn't wish this devastation on my worst enemy! But for me, once the hurricane was over and we were on survival mode for several days, it was a nice diversion from my consuming thoughts about hair loss. I liked not having power as I couldn't see my receding hairline in the mirror. I liked having an excuse to 'not look your best' every day. We were too… Continue

Added by Laurie on September 16, 2008 at 9:58pm — 1 Comment

Stress

I hear so much about stress being a major factor in alopecia. I've heard alot that it was probably a stressful event that set off my son's alopecia. I've talked with him and we can't come up with anything. Anybody have any thoughts on how stress factors in on the developement or continuation of alopecia?

Added by Margie on September 16, 2008 at 8:02pm — 10 Comments

My Hair Club Experience

Today, I just went to the Hair Club. The lady said that she never had a customer with so much hair. Well, they started to put the system on. I asked if they could use maybe the tape, just in case I didn't like it, it could be easily taken off. Well she pulled up my hair and glued the system on the perimeter of my head. It felt like this tape was pulling my hair out. She started to pull my hair through this system and OUCH!! It kept getting tangled and it felt like my hair was being pulled out.… Continue

Added by Dawn on September 16, 2008 at 7:40pm — 3 Comments

My recent silence

Hey guys - I just wanted to explain why I haven't been on here lately. I live in Galveston, TX and evacuated last Thursday from the island. I am staying with friends elsewhere in Texas. We are safe (me, the boyfriend, and the two puppies). I am heading home to hang out with my family in Chicago for a few weeks because they are calling for the island to be shut down for a few more weeks. Ike actually made landfall on the island, so it is a mess down there. Just wanted to let you know. I'm… Continue

Added by Rachel on September 16, 2008 at 5:53pm — 2 Comments

Photos on Flickr.

Hi all.

I just found an great alopecia group on Flickr to join. Lots of photos with/of alopecians as ourselfs.

http://www.flickr.com/groups/alopecia/

Take care everyone.

Roger.

Added by Roger on September 16, 2008 at 12:12pm — 4 Comments

getting onion juice tomorrow

Tomorrow im going to start to buy onion juice, for anyone who would like to know. I will start it on my son wednesday and we will go from there. I will keep everyone updated weekly to let you know how it is going, thanks

Added by Kami on September 16, 2008 at 12:30am — 8 Comments

Deconstruct your beauty norms

"Beauty must be defined as what we are, or else the concept itself is our enemy."

Beauty must be defined as what we are, or else the concept itself is our enemy Deconstruct your beauty norms

Take a stand against lookism (unfair appearance-based…

Continue

Added by rj, Co-founder on September 15, 2008 at 10:00pm — No Comments

Need a new profile layout?

Just found another site that provides free Ning templates that you can apply to your Alopecia World profile. It's simply called Ning Themes and provides African themes, beach themes, city themes, nature themes, and Rasta themes. Check it out here, especially its how-to section.

Added by Alopecia World on September 15, 2008 at 5:22pm — 1 Comment

Celebrities with alopecia

I just recently found out the Christopher Reeves (superman) dealt with alopecia beginning at age 16. I showed this info from the internet to my 9 year old son. I told him that he had good company with what he's going through as I personally think that Christopher Reeves was extremely good looking, talented, etc. My son was very intriged and I think he found it comforting to a degree. Do any of you know of any other celebrities (adults or children) who have alopecia?

Added by Margie on September 15, 2008 at 3:54pm — 7 Comments

Thyroid Problems

I know having alopecia makes it more likely that you will have other auto-immune diseases, thyroid problems being one of them. I was diagnosed with hashimoto's at the same time as alopecia 5 years ago. My TSH levels have always been fine and besides getting tire a lot faster than I should, I have had no problems with it until now. For the last weekish I've just felt like my thyroid is enlarged. It kinda feels like someone is constantly pushing on it or just pressure in my throat. Sometimes it… Continue

Added by Kristen Ridenhour on September 15, 2008 at 2:28pm — 5 Comments

I keep meeting her this way

I opened the door to my home late Friday night and saw the most beautiful woman in the world. She glistened as I fastened my appreciative gaze on her and thought to myself, “What a lucky man!” I walked in her direction because I needed to divest myself of the things that were in my hands, but as I approached her and noticed that she noticed me, I could feel the rhapsodic rhythm of love beating in my heart. She did not initiate our conversation. Rather, I did because I was so pleased to have her… Continue

Added by rj, Co-founder on September 15, 2008 at 3:00am — 5 Comments

Teenagers are Crazy

My wonderful teenage daughter is at it again. As we look for new a different style wigs to get, especially with the fall weather approaching, she has her sights set on a jet black long haired wig with red streaks in it. Just when I thought she has outgrown the 'goth' look she throughs me a curve ball. All but one of her wigs is some shade of blonde; the one that is not is hot pink with black roots. I guess I can't say much about the pink since at that time my own hair was pink. She just doen't… Continue

Added by Heather Marie Brown on September 15, 2008 at 2:34am — 3 Comments

I'm talking but do they listen?

Does this ever happen to you?

You are in a conversation with someone and all they want to do is hear themself talk.
I contribute my fair share to the conversation yet the person continues on with a rant without even a bother of listening or even hearing what I have said.

So Annoying....

Thanks for listening. LOL

Jeff

PS I feel better now
PSS Dont let this happen to you

Added by JeffreySF on September 15, 2008 at 12:59am — 7 Comments

spencer [again!]

i just had my first date with psencer last nite!!! it was awesome! we went to the movies and saw 'traitor' it was confusing. i couldn't really pay attention tho. spencer kept whispering stuff to me and got like 3 inches from my face! and he said i was pretty!!! the lil terd! he didn't kiss me!!! gaah! y does he have to be so shy???

Added by Courtney on September 14, 2008 at 2:27pm — No Comments

omg was my mom right?

o.o weerd. i started eating alota sunflower seeds, and less milk. and weee. hair is growing back.

or is it just doing it by itself?

idk.

my first bald spot [which used to be only one inch, but covers almost half of my head now] has my natural haircolor growing in the middle.

all my other bald spots have soft white hair in them somewhere, except for the edges [around my ears and the bottom of the back of my head]

but i have enough hair to have a short mohawk.

i… Continue

Added by VanessaVandalism on September 14, 2008 at 1:59pm — 1 Comment

What do you think if there were more bald women in mainstream media?

In the past few months I've learned so much about various kinds of alopecia and the people it effects. I would love to see women more accepted in movies, news and entertainment that are bald. It's the artist in me speaking out, but hey. Why not?

Added by Leon Johnson on September 13, 2008 at 11:00am — 5 Comments

Over it!!

Ok so I'm not sure about anyone else but I'm so sick and tired of what comes out of the mouths of poeople who have no idea about Alopocia Areata!

I am new to this disease I've only had AA for about a year and a long terrible year. After shaving it all off and it growing back I'm now left with a cute bob, with a few new bald spots and thinning eyebrows.

So to get back to my story, I've decided to stop treatment it was really working and now not so much. I was talking to my neighbor… Continue

Added by Jessica on September 12, 2008 at 6:15pm — 7 Comments

'til death do we part

What started out as a good day hit the skids shortly after I crested the door way. The flash of the answering machine caught my attention. Nothing unusual there. Probably the usual hang up calls from telemarketers. Not today.



“T”...only a select group of old friends know me by that moniker. The speech was slurred. I knew the voice straight off and could tell that he had crawled inside a bottle before making the call. “What the blankity blank do you want?”, a comment I apparently… Continue

Added by Tony on September 12, 2008 at 6:19am — 2 Comments

Im curious. Has anyone tried this?

Hi everyone.

I wonder if anyone tried this?

http://www.calosol.com/alopecia_areata.php


Roger.

Added by Roger on September 12, 2008 at 5:10am — No Comments

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