September 2011 Blog Posts (77)

My experiences with Alopecia

I'm a 24 yr old Indian guy with AA. It's been 2.5 months since I discovered and frankly it's been hell.

I'm a part-time writer (besides being a software engineer in Bangalore) and writing about my experience with alopecia has been almost therapeutic.

Here's my blog.. Comments and feedback are very much welcome.. :)

http://alopecia-anonymous.blogspot.com/

Added by Nachiketa Sanyal on September 22, 2011 at 8:06am — 5 Comments

Mohawk!

Hello! I have alopecia areata and right now what's left of my hair is a sort of mohawk!
I am curious though, have any other alopecians experienced hair loss like me? It started around my ears and gradually progressed upwards and around the back.

Added by Amy on September 22, 2011 at 5:30am — 3 Comments

The Bald Man and the Fly

THERE was once a bald man who sat down after work on a hot summer's day. A fly came up and kept buzzing about his bald pate, and stinging him from time to time. The man aimed a blow at his little enemy, but — whack — his palm came on his head instead. Again the fly tormented him, but this time the man was wiser and said:

"You will only injure yourself if you take notice of despicable enemies."

SOURCE: Æsop.(Sixth century B.C.)…

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Added by rj, Co-founder on September 22, 2011 at 4:30am — 1 Comment

Becoming transparent

Today I took a big step, in my battle with self esteem, something that Androgenetic Alopecia has robbed me of having...I went to choir practice and I left my wig( Hannah, I name everything, lol)at home. I did this, because I wanted to give the Devil notice that my wig and my Alopecia, does not dictate the person that I am. Let me explain...Ever since I purchased my wig 2-3 years ago, it has been my life support. I have used it as a crutch. I have allowed the wig to have power over my thoughts… Continue

Added by Elizabeth on September 22, 2011 at 12:00am — 4 Comments

It's something you need to hear

I am continually impressed by members' willingness to share their struggles, triumphs and insights -- especially since it takes real courage not only to reach out for help, but to also reach back with help.

I see this all the time in Alopecia World and, trust me, I realize as much as anyone that it's this very kind of openness that makes our beloved community so strong and appealing to alopecians from all over the world.

I could never thank each of you enough…

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Added by rj, Co-founder on September 21, 2011 at 8:30pm — 9 Comments

New 'Quick Add' Feature

Dear Member,

Thanks to new feature called "Quick Add," you can now update your status and post other new content from any page on Alopecia World.

To do so, you only need to click the plus sign (+) next to the "Share" button in the "Latest Activity" feed that now appears on every page of the site.

You can quickly post status updates as well as new blogs, photos, videos, discussions, events, and music.

Add a check to the Facebook or Twitter box to notify your…

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Added by Alopecia World on September 21, 2011 at 4:30pm — No Comments

Healing room

Yesterday I was on the bus to work. A bald woman got on the bus and I immediately wanted to go talk to her and ask her how shes dealing with the hair loss and if she wanted to go to the healing rooms ( to get prayed for, for healing) I said "hi, I was wondering, do you have alopecia like me"? She said "no, I'm going through chemo". I felt so terrible. I'm just bald and healthy but she is bald because she has cancer and is going through chemo. I felt absolutely terrible. I then encouraged her to… Continue

Added by Alexis on September 21, 2011 at 1:30pm — 2 Comments

My beloved niece: A gift of baldness

One of my young nieces has a very hard time with the fact that I don't have hair. One day she asked me, "Do you think that you are pretty and you have no hair?" I responded, "No, I know that I'm pretty!" She just walked away.

A few days later, her mother told me that they were riding in the car and my niece emphatically stated, "Mama can you believe that Auntie Jacqui thinks that she is pretty with no hair!"

So the next time I saw my niece, I told her that everywhere I go people walk… Continue

Added by Jacqui on September 21, 2011 at 9:30am — 5 Comments

One in a million!

I get stares everywhere I go. It really bothered me before. But now I embrace it, maybe I like the attention. I also like to let people know about AA because the more people know about it, the more chances a cure will be found. I realized each one of us is literally one in a million and we should not hide it, but be proud of it. I have AA and I sometimes do want my eyebrows and eyelashes back, but if not for AA I wouldn't have what I have now. A beautiful girlfriend that loves me no matter what… Continue

Added by Alex on September 21, 2011 at 4:27am — 1 Comment

Her words were like daggers

I remember sitting in my biology class in high school, front row(Being the teacher's pet I was, always busy taking notes) trying to impress my crush, my teacher, Mr.Suruj. I remember it like it was yesterday, because this was when I really became aware, that others had caught on to my Alopecia. I had my hair in a ponytail, with my ever growing bangs hanging at the side of my face. So there I was, looking studious as ever, with my eyes engrossed in my textbook reading about the Amebas and the… Continue

Added by Elizabeth on September 20, 2011 at 5:00pm — 4 Comments

People looking and talking

Hey all,



It has been a while since my last blog post, so I thought it was time to share my story with you again. If you don't care, just read it!



Well, in my last blog I mentioned my bald spots which appeared again. Since then it has gotten worse, the spots have expanded and I look like a dalmatian again.

I have no idea why it has gotten worse that fast, but I guess nobody does.

I don't wear a wig anymore because I just feel that I would be hiding who I am that… Continue

Added by Lionel on September 20, 2011 at 5:00pm — 1 Comment

My other blog

Hi,

I have decided to start writing blog posts on my other blog again. I was just posting to this site only, but I am going to start posting on my blog instead. I am a member of another support website so this way, any members of all the sites can see it if they would like. The link to it is below if you would like to view it. I'm not going anywhere so I will still be visiting this site as often as I do now. Thank you for your support.…



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Added by Alliegator on September 20, 2011 at 9:56am — No Comments

My AA is gone but...

My AA is almost gone. I feel like I dont belong here because I have hair again. But coming here, I remember what it was like. I cant leave this behind, it made me who I am today. I love everybody on here for being them and for helping me. Now Im going to do the same for them.

Added by Rose Wickler on September 19, 2011 at 2:34pm — 2 Comments

Have you met these people? They're simply amazing!

If you spend quality time in Alopecia World, you will meet scores of the most fascinating and engaging people in the world today.

They are musicians, artists, painters, scientists, world travelers, teachers, rabbis, models, comedians, college students, athletes, writers, actresses, photographers, film makers, beauty queens, and community activists.

And that's just for starters!

Each day brings new faces, new stories, and new opportunities to learn how to not only survive…

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Added by Alopecia World on September 19, 2011 at 3:00am — 4 Comments

People

This happens to me almost everyday, I am out and someone comes up to me asking what happened or if i have cancer. It usually never bothers me unless they ask rudely, because their just curious about why im bald. What bothers me is when a person will ask me why I dont wear a wig and make a big deal about it. All I want to shout at them is "I actually like how I look...thanks" but I dont. Ive worn wigs before and I honestly like the freedom of not having one though I dont think its bad if someone… Continue

Added by Rachel on September 18, 2011 at 6:30pm — 10 Comments

Full head of hair :)

Well my bog a while back had that i had regrowth but it started to fall out again, well i shaved my hair off to start a fresh and this time i have more :)

I have a full head of hair with a couple of bits still thinner but defo could walk about without my wig now. I am so annoyed with myself tho as i dont have the confidence to go about with my new hair do yet as i dont like it, lol. I love the hair tho, I think it's still a little short for me so hoping that this regrowth is to stay and i… Continue

Added by lynne on September 18, 2011 at 7:58am — 6 Comments

HELLO!

Im so happy to have just joined this wonderful site!
Ive been looking for years for support groups, website, etc....
I havent ever met another person with this disease, ive only heard of people, other than myself!

SO WHO EVER CREATED THIS WEBSITE I WANT TO THANK THEM!!!!!!!!!

Added by Meaghan on September 17, 2011 at 4:04pm — No Comments

Saw a fellow alopecian today - How to say hi to a total stranger

Had a chance meeting with a fellow alopecian today--unfortunately we did not really get to talk. I was at the P.O. and when I got in line, I saw a woman a few places in front of me that was only wearing a fitted hat on her bald head--she didn't seem to have eyebrows or lashes either. I was so excited and proud of her for going out that way. I watched to see if the others in the P.O were staring or looking at her (it was crowded) and I didn't see anyone paying any attention to her--except me for… Continue

Added by Rodeli on September 16, 2011 at 11:00pm — 3 Comments

job please!!!

any jobs guysss??? i've finish 4yrs. course business administration major in business management...im now working in a company wherein we supply furnitures from china and malaysia for 5 yrs now and i want to try other jobs out of the country.. any suggestion???? tnx.. godbless :)

Added by charlotte on September 16, 2011 at 4:13am — 1 Comment

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