All Blog Posts Tagged 'with' (24)

When Did I Stop Thinking About My Alopecia?

Recently, I found myself wondering something.  When did I stop thinking about my alopecia?

When I first lost my hair, it was impossible not to think about it. I thought about it all the time. Whenever I washed or brushed the strands I had left, when I stared back at the bald reflection in the mirror that I no longer…

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Added by Cheryl, Co-founder on March 9, 2026 at 6:00pm — 4 Comments

Not Everyone Feels Free

Welcome to a supportive space for your real alopecia journey — beyond the highlight reel.

Let’s be honest: social media is filled with stunning bald influencers living their best lives. They glow. They pose. They boldly declare "Bald is Beautiful." And it is. But if you're quietly wondering, “Why…

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Added by Cheryl, Co-founder on August 5, 2025 at 2:35am — 2 Comments

Truthfulness and Alopecia: Confronting the Fear of Feeling Ugly

Do you ever struggle with feeling unattractive due to alopecia? How has it affected your self-image and how do you deal with those emotions?

Living with alopecia, a condition characterized by hair loss, can challenge our self-esteem and self-image in profound ways. It's okay to acknowledge the feelings of vulnerability and…

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Added by Cheryl, Co-founder on September 4, 2023 at 3:17pm — 2 Comments

Nature curiosity: Do other mammals go bald like humans?

"I recently read on reconnectwithnature.org, in the animal kingdom, hair is unique to mammals, according to Animal Diversity Web. No other animals have hair, and all mammals have hair at least to some extent. Even marine mammals like…

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Added by Cheryl, Co-founder on December 23, 2022 at 2:34pm — No Comments

5 Things You Should Never Say to Someone With Alopecia

According to an article on Everydayhealth.com:  

"Commenting on someone’s appearance is rarely a good idea. And saying these things to someone experiencing hair loss can be unhelpful at best — and hurtful at worst."

1. ‘Do You Have Cancer?’…

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Added by Cheryl, Co-founder on November 29, 2022 at 7:30pm — 8 Comments

12-Year Old Rio Allred Dies by Suicide after being bullied about her Alopecia

This is tragic, but I think it is important that we all share this story.  What can we do individually or as a community to help our brothers and sisters?

"Candlelight vigil for 12-year-old North Side Middle School student"

"Nicole Ball claims her daughter was bullied…

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Added by Cheryl, Co-founder on March 22, 2022 at 5:00pm — 7 Comments

12 Honest Questions About Alopecia Featuring My Mom!

Parenting has difficult moments. When a child is diagnosed with alopecia, the whole family is swept up into a whirlwind of change. There are doctor appointments, questions, treatments, and you are just looking to assure your child will live a happy life in a world that can be very cruel. Through honest conversations, we are…

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Added by Gabe on May 14, 2020 at 9:36pm — No Comments

"I didn’t know it was OK not to completely fit in."

I came across this article on Refinery29.com and I am sure many with alopecia or children with alopecia will find it encouraging.

"Model Jeyza Gary has a rare, inherited condition that causes her skin to shed every two weeks. Two years ago, she decided to pursue a modeling career while completing her bachelor's degree in special education.…

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Added by Cheryl, Co-founder on September 19, 2019 at 11:00pm — No Comments

The next Chapter

Hellooooo everybody!

Wow it's been a long time since I've been on the site.  I have missed seeing all the smiles and reading all the stories,  but my prayers and positive vibes have been sent continually.  

I lost my hair in a quick fashion 17 years ago.  It was a 3 week whirlwind of hairloss and wow, it was scary.  Doctors didn't know very much about Alopecia then (well, at least my doctors didn't) and they kept telling me it was just stress.  Sigh.  Have you heard that…

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Added by Sandy K. on September 30, 2017 at 8:00am — No Comments

How do I help my child who is being bullied at school because of her alopecia?

Just last year my daughter, who is in elementary school, lost all of her hair. She's had alopecia areata for a few years but we always managed to cover her bald spots. All of a sudden all of her hair was coming out. It turned into alopecia universalis. At first she wore hats to school, then we got her a wig. Kids immediately made fun of her for not having hair and then for wearing the wig. When school got out for the summer she was so relieved. She had a great low stress summer but just…

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Added by Akbama2007 on September 1, 2016 at 12:00am — 51 Comments

Actress Viola Davis reveals battle with alopecia

According to an interview with Vulture that I found on Bet.com, actress Viola Davis struggles with alopecia. 

Many have noted that there seems to be an error in the article: The fact that stress does not cause alopecia, but may trigger it.

Viola Davis is a natural beauty, but there was a time when the actress really struggled with revealing what was…

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Added by Cheryl, Co-founder on March 23, 2016 at 1:00pm — 14 Comments

Will I have alopecian babies?

It has been a while since I have been on the site. The holidays and school took me away for a while but things have settled down again and I intend to do a lot more posts on Alopecia World in the coming months.

I have much news to share, where shall I start. . . .

It was a wonderful holiday season for me, one of the best in years. I had a house full of people for about two weeks straight and I loved every moment of it. Anyone that knows me knows that I love the holidays…

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Added by Kristie "IronDoll" Howard on January 18, 2016 at 4:30pm — 23 Comments

Just some Words (poem)

JUST SOME WORDS

Don't wanna be the victim,

Don't wanna play the part,

My false sense of self is tearing me apart.

I'm done telling myself lies

I'm done hearing myself cry,

The way i lived my past wont be the way that I die.

I didn't waste those years for nothing,

I didn't give'em away for free,

the things I've hated about myself,

they aren't really me.

I guess I did it to see how bad it hurt,

I guess I lit it to see how bad it…

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Added by Leif Rautenbach Bridgman on April 27, 2015 at 3:34am — 1 Comment

A mom needs encouragement

Hi. My name is Kerry, and I think I decided to write this blog mainly to get out my feelings of frustration, helplessness, and fear for my 5 year old daughter.

At the end of March 2014, my daughter brought home some adorable school pictures. When I looked at them, I noticed her eyebrows were SO full, and looking at her then, they had drastically thinned. Immediately, I began trying to think back and looking through cell phone pictures of her and I discovered that this had begun…

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Added by Kkerrylynn on May 29, 2014 at 2:00pm — 39 Comments

Alopecia Mommy

Hello Alopecia World!

I'm a new mommy (two babies under 2 years old!) and I started losing my hair shortly after a minor car accident while I was pregnant with my son. I gave birth to my daughter last summer and experienced about 90% hair loss following delivery.  I'm curious if there are any other moms out there that have had this happen to them?  Or anyone that struggles with alopecia and wants to share...

I started writing on wordpress:…

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Added by alopeciamami on November 18, 2013 at 1:02pm — No Comments

An alopecian looking for work - An update

It's been 3 years and 6 months. Unemployment came and went. I had to file for bankruptcy, no money in means no money to go out; no choice in the matter. Difficult to maintain a home with one income where it needs two. I had to give my car back. I managed. I survived because I'm married and my husband works. We cut back as far as possible, even moved into a lesser rent apartment. We were lucky the complex we live in worked with us. While my husband was good with everything we had our moments.…

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Added by Lili Añel (aka Eulalia) on February 12, 2012 at 9:30pm — 2 Comments

Coming out bald!

I had my "coming out" for lack of a better term last night. One week ago yesterday I had what was left of my hair buzzed off. Alopecia claimed most of the hair on my head.



I am a singer/songwriter. I had a gig yesterday at Philadelphia's premiere listening room, The Tin Angel. I opened for Vance Gilbert. I've played the Tin many, many times, but never without hair. While I've been walking around bald for one week, this was the first time a large amount of people who both were fans… Continue

Added by Lili Añel (aka Eulalia) on March 13, 2011 at 5:24pm — 13 Comments

A good way to have fun with a bald head

Hi again

Sorry again if there are any misspellings or grammer mess ups. Anyway I am going to talk about a few ways of having fun with your bald head. One way I had fun with my bald head in school and outside of school was when holidays came around I would yet the other kids paint hearts, clovers, eggs, christmas trees, menorahes, and many other things. lol It was great and the other kids and everyone else thought it was awesome!! I would also let the younger kids put stickers on my head.… Continue

Added by Samantha White on June 30, 2010 at 7:59pm — 3 Comments

8-year-old daughter diagnosed with alopecia in June 2009

Hello Everyone. I've been hanging around this past month or so and finally decided to tell "my story". I am a wife to a very great man and also have two daughters...ages 8 and 4. My oldest daughter was diagnosed with alopecia this past June 2009. It started out as a small patch about the size of a quarter on one side of her head. At first I thought that she was pulling her hair out, but then I noticed another patch on the other side of her head, and then another, and then another, etc. We were… Continue

Added by Ronda Darling on November 25, 2009 at 8:30pm — 8 Comments

My Life Story (continued)

Hey Yall,

Thanks for comin back to read haha . But well i said i would write more today so i am haha . So here i go...

Well you know we had to move from my elementary to another one because my dad got got a university coachin job. well i never saw him pracitcly my whole 4th grade year.well i had a fourwheeler wreck that summer and so i had to start a new school learn how to walk again and never see my father ha what a great year huh.So i lived with my pawpaw for that year. but well it… Continue

Added by Bre Cobb on June 16, 2009 at 1:06pm — No Comments

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