I just want to say that your story is inspirational. I began to loose my hair to Alopecia about 3 years ago and have been forced to shave the rest of it all off ever since. when I first lost it I went looking on the Alopecia world web sight berore becoming a member and happened to come accross the story about nicky which I found to be quite touching. I thought Nicky and your family handled this very maturely. At the time it helped me to realize that it must be a harder thing to go through as a kid than as a grown man. I am now happy to go around with a completely bald head and have come to really like it. I dont think there has ever been a more fashionable time to have a bald head if you are a guy anyway. My name is Richard Tuck and I come from a very sunny part of New Zealand so I have to remember to put on pleanty of sun block. Hopeing that nicky is doing really well I wish you all the best

Hi Carrie, great photos'..How is Nicky doing? It has been awhile..Cindy

Hi Carrie,
How are you and Nicky? My daughter Amanda also has AA. I hope to chat with you soon.
Tracy

I know what you mean...I think we owe Nicky a letter and I keep telling her to get on it, but something always seems to get in the way. Sam is very scheduled during the week so we write letters in between weekend activities..One is coming though..How is Nicky adjusting to school?

Hi Carrie, I hoped you and your family enjoyed a nice thanksgiving. Samantha just loves the card Nicky sent her. How is Nicky doing in his new school? I hope he is continuing to make friends and find his comfort zone among peers. Cindy

HI! JUST WANTED TO SAY THANKS FOR COMMENTING ON MY BLOG. I STILL HAVENT WENT THROUGH WITH ANY TREATMENT. WE AS A FAMILY HAVE BEEN DOING WELL DEALING WITH HAYDEN HAVING ALOPECIA. HE HASNT STARTED SCHOOL YET AND I AM SURE THAT A WHOLE OTHER CHAPTER WE WILL FACE WHEN IT COMES. I AM SO HAPPY TO BE INVOLVED WITH THIS SITE! AND I AM ALSO HAPPY TO KNOW THAT WE CAN SHARE EACHOTHERS GOOD AND BAD TIMES WITH EACHOTHER AND KIND OF RELATE. I FEEL HONORED TO KNOW PARENTS WHO HAVE KIDS WITH ALOPECIA, BECAUSE I KNOW WHAT IT IS LIKE. AND I CANT WAIT TO GET TO KNOW ABOUT YOU AND YOUR SON! HE IS SOO CUTE. YOU HAVE A BEAUTIFUL FAMILY!

Samantha would love to...I will email you..

We are based outside of Reading, PA and have CAP Kid Meeting in Southeren Illinois/Missouri, PA and NY.

visit www.childrensalopeciaproject.org and register so you get our emails and you can check out upcoming events.

Take care,

Jeff Woytovich

Thanks Carrie..Samantha always enjoys looking at the pages on this website too. Nicky his a sharp looking young man and I think he will be fine. If he is interested in having a pen pal, Sam always has room for one more...I hope things are getting better for Nicky at school. I read your blog to Samantha and she was mad. She told me to tell Nick he should bully back..Sam is spunky..Cindy

Hi Carrie and Nicky,
How are you guys today? I just wanted to say hello!
LeslieAnn

Welcome!

Roger.

You're very welcome, Nicky seems like a cute kid, and I can only imagine what its like to change schools, I wish him the best. Like others have mentioned, I would go to the school and talk to his teachers and see what you can come up with together. I'm sure once he gets used to the new school and makes new friends he will open up a little more with their support. As always if theres anything I can help you with, simply ask. Best of luck with everything,

-Drew

Hi Carrie and Nicky. Welcome to Alopeica World. I have a 6.5 yr old daughter who is AT. I feel lucky that she has been able to embrace her Alopeica and has a spunky attitude. She does not let anything stop her from being a kid. She is currently has regrowth with treatment. I think it is great that Nicky has signs of regrowth and has grown his lashes and brows back. Sam has no lashes or brows as well as no hair. She has been wearing a wig since Dec. Alopecia snuck up on us in May 07 and after the summer past Samantha lost it all in a short time. I think it is harder for us a moms, but Samantha's energy and acceptance helps me get through it. We are hopeful that with her treatment her hair will continue to grow. I posted on your blog. I hope things get better for Nicky. You will find some wonderful support here..take care,Cindy

Hi Carrie & Nicky! I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder

Hi Carrie & Nicky, welcome to AlopeciaWorld! We are here for support, call on us and stay blessed!

Hey Carrie, first let me say Welcome to you and your family to this site. It's a great site and as Nicky gets older he will hopefully be able to find the support he needs in tough times, and until then hopefully you will be able to find the support.

I just recently lost my hair (within the last year I went from one small patch to losing probably 70%+ of my hair) so I don't know what its like to grow up with this, or to have a child with this, but just try to stay positive. In my case my mother gets really upset and only feels sorry for me whenever my disease has come up in conversations, so therefore I never feel like I can talk about it or anything with her, and so it never comes up anymore. I can understand her getting upset but my goal is not to be treated like a totally different person. Yes I have no hair on my head, but no that does not change the person I am. I guess thats the most important thing you can teach your kid.

Just keep your chin up and I wish you and nicky the best of luck. If you ever have any questions you think I could help you with feel free to ask me.

-Drew

Hi Carrie, My heart truly ached while I read your post. I have a 9 year old with aa. It started this last July. We were very fortunate to have an extremely supportive school. They had an assembly for the 4th & 5th grade students as these were the grades Casey would be sharing the playground with. The nurse explained what it was all about. So far we have been very lucky and only had one incident of teasing. I know that the NAAF has some wonderful letters that can be copied and sent to the parents of the school kids. I think the true root to a lot of teasing is that some parents don't realize that THEY are the ones that need to instill in their children the sense of compassion and respect for others. You may want to visit that site and look for the letters. We did not use them but I was going to, and stil may, if teasing becomes an issue. My toughts are with you and your sweet boy. I'm sending you and your son HUGS, HUGS, and more HUGS.

Hi Carrie, Nicky and Family,

Welcome to Alopecia World.

jeff