Merari's Page's Comments

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At 9:21am on October 30, 2009, Mallory Crowner said…
Hi there..my name is Mallory and I'm from Michigan. Just looking for some others with AA around the state. ;o)
At 1:13pm on February 13, 2009, Javier A. Santiago said…
(:)
At 1:12pm on February 13, 2009, Javier A. Santiago said…
Hello Merari!! How are you? I can see that you are doing great and so beautiful like always!! This is your cousin Javier from Puerto Rico (I'm Zoe's brother) I want to tell you something very quickly; first: I really care you and love you!! For me you will be the little cousin that at this time I don't have here in Puerto Rico that always has a great smile and funny humor. I remember your last vacation with your sister and parents in Puerto Rico. In that moment I saw a little girl that shows a lot of great feelings and extraordinary and unique style! For me you are unique, you are important for your parents, grandparents, aunts, uncles, cousins and FOR ALL OF THE MEMBERS in this great web page. I wish you the best and I know God will help you a lot during the next years! We believe in miracles, we believe that God knows all!! So!! Let see what happens with this!!

PS: Miraida... I don't have idea about Merari's condition since last Sunday. I can't believe this but I really know that God have something special for this situation!! I know who you are...I know what kind of person you are and believe me that I KNOW WHAT KIND OF MOTHER YOU ARE! I can imagine it is hard for you but I know that you can continue with this because you have a lot of people that praying for you and Joel. I wish you the best like always! I will not cry...I will be happy because I know that God have a special purpose for this!! God Bless You!! With love...

Miraida/Merari/Joel/Damaris and all of the family and members:


Deuteronomy 31:6
Be strong and of good courage, fear not, nor be affrighted at them: for Jehovah thy God, he it is that doth go with thee; he will not fail thee, nor forsake thee.

Thessalonians 5:16-18
Rejoice always; pray without ceasing; in everything give thanks: for this is the will of God in Christ Jesus to you-ward.

----------------------------------------------------------------------------------------------------------
Javier A. Santiago
jasv83@hotmail.com
At 5:30pm on December 23, 2008, Kelsey said…
your welcome glad to help and thank you for thanking me. ha ha ha!!!!!!!!! : )
At 7:17pm on December 22, 2008, Cindy said…
Hi Jennifer, how is Merari doing? Did she have a good experience with looking for a wig?
At 11:52pm on December 10, 2008, Karen said…
Your little one is so cute. She is exactly like my daughter because Amber also has a disney princess obssession as well. Her birthday cake also had the princess picture on it as well.

It is though I know and I just wanted to let you know that you are indeed not alone on this journey eventhough at times you might feel as if you are.

Amber did loose 90% of her hair within about six months as well. But it did all grow back and than she started getting pactches and now it is growing back again so I guess this is the unpredictability of it and we just need to take it as it goes. It is sad sometimes so I can understand exactly where you are coming from but I always keep reminding myself to thank the lord that it is nothing else....and this has helped me come to acceptance. I have my days but all in all I have come a long way and I talk openly about it to other parents at her school and teachers. This has help me and her alot.
At 5:53pm on December 9, 2008, Char said…
Hi north neighbor :) I'm from Northwest Ohio, 45 minutes south of Toledo, so I've heard of Lansing. I've had alopecia areata since I was 11, and universalis since I was 23. Unfortunately as I got older my disease progressed. Merari seems like a sweet girl and looks like she has a load of love surrounding her, which is very important! My family was my strength during this process and haveing their acceptance and encouragement is what helped me accept my self. Everyone is different, sometimes the difference is more obvious in some than others.
At 6:10pm on December 8, 2008, Lyndsey said…
We live about half an hour west from Coldwater. I'm not supposed to give out the name of the town to people on the internet. Thanks for giving me the information about Merari.
At 3:05pm on December 7, 2008, Kelsey said…
She is adorable i do not no much about alopecia ether and o my gosh she is cute.
At 6:58pm on November 30, 2008, ESTHER M said…
HI, my name is Esther. I am Merari's grandma. As soon as i hear about my granddaughter illness situation, i start seaching the web to a site that will inform me all about this illness and when i got this site i ask for brochures and i let my daughter In Law knows...after few months i get this invitition to join officially my granddaughter page. I am so happy that even when is a hard and very difficult time to us as family seen our family member loosing hair...we learn that she as a child is a treasurer in our lives and the happiest girl in the whole world and that's the real lesson to us...she is bright, sharp, happy, smart, very creative, a leader, and from all above a Christian child who loves the Lord at this early age and sing and enjoy praying and helping out his Pastor Dad...so...what else??I will praise the Lord for this mercy and for Her and all of us as family because our faith relay on our God's promises and God's Word...I am waiting for a miracle....so I am reaching my hands out to get it soon....
At 8:38am on November 29, 2008, Cindy said…
Hi Jennifer, thank you for the nice words. I am happy to share some info with you on wigs. Over the year, I have learned a lot. Samantha has been wearing a wig for a year now. The first wig we bought was an Amy Gibson wig and it was not custom, but I needed it ASAP...Later, I learned about the Hair Club for Kids which is through the Hair Club for Men. www.hairclub.com. They give kids age 6-17 3 free hair replacements and 8 services a year. Samantha and well as several other gals on this board like the wigs. If you go the website you will find a number to call to get the application. It only requires a doctor signature and it can just be the primary doctor. I brought photos of Sam before hair loss and they matched her color beautifully. They will make a hair piece to fit Merari's hair loss needs. They tell you it takes 10 weeks, but it seems more like 14. We are waiting for another one and it has been 12 weeks already.

Children With Hair Loss is another organization you can contact. www.childrewithhairloss.com They will send you a temp wig and send you to a place they work with to have it trimmed and to have a mold made for a custom wig, This too is free. Once I found out about the hair club I did not move forward.

My least favorite to deal with was Locks of Love. They required a lot of information and in the end what they wanted to charge me for a wig I could get faster and cheaper or for the same money on my own. However, for those in a low income bracket it maybe worth the energy, but it takes 6 months to get the hair.

Samantha also wears headbands with hair sewn into them, like the black one on my page. We bought a few and she wears them when she is home. I got those from www.hatswithhair.com. I suggest only getting the human hair ones. We have some with different hair and I only like the human hair one. Again, you can match your hair type and color. It has been a great alternative to a wig in the warmer weather and Sam loves them.

I hope this information help you and Merari. How much hair loss does she have now and are you trying anything? Please email me anytime.Cindy
At 10:41pm on November 28, 2008, Cheryl, Co-founder said…
Merari, That is so encouraging! Jennifer is a very lucky girl. If you take a look on the right side of this page, you will see a list of books on Alopecia and there are also some kids books. Hopefully that helps.

Take care,

Cheryl
At 1:27pm on November 27, 2008, LeslieAnn Butler said…
Hi Jennifer and Merari,
You are wonderful for being so supportive of your niece.
You might want to get my book because there is some helpful information for women and girls who have alopecia. It's called, "If Your Hair Falls Out, Keep Dancing!" and you can find out more on my page.
Take care!
LeslieAnn
At 8:28am on November 27, 2008, Cindy said…
Hi Jennifer and Merari, Welcome and thank you for the friend request. My daughter Samantha is also 6, turning 7 going on 17 soon.. You are adorable! You sound a lot like my daughter..She loves to make books and write her own stories too and she is quite a student in her 1st grade class as well. Samantha does not Alopecia stop her from doing anything she wants to and she is not afraid to tell people about it and explains it well. How has Merari been dealing with her AA? Happy Thanksgiving and write anytime..
Cindy
At 8:04pm on November 26, 2008, Cheryl, Co-founder said…
HI Merari, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
At 7:25pm on November 26, 2008, rj, Co-founder said…
Hi, Merari and Jennifer. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder

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