I read about how you shopped around and found so many great options. Do you think you could recommend a place for me. I found some on the internet and emailed them but no one has answered me. I figured if they don't call me back then how sympathetic can they be to the cause. More and more of my hair is falling and i need to find something before it becomes terribly obvious. I work as a pre k teacher and so i need to find something quick. I am sorry i am writing a book but i am just desperate for a place. Thanks:)
I was wondering if your group in Monroe ever got off the ground? I'm not terribly far from you and have been looking around if there are any groups around.
I'm writing to you because I will be having a program at my school "What is Beautiful" and we'll be discussing the many lengths that women/ men have gone to achieve what is beautiful according to society. We will show quick clips and then have a panel consisting of Rutgers students and people with alopecia. (I'm still not too sure if I will be on the panel...im still kinda shy about it) Would be interested in participating or know of anyone that is around the NJ area that would like to participate?
Date: April 21st @9:15pm
Location: Rutgers University, New Brunwsick, NJ 08901
Student Activities Center
Please let me know as soon as you can:)
Thanks
Darlenys
Hello Shanon!! I know, this holidays are crazy!! There is not time at all!:)
The date sounds pretty good to me!! I'm very excited!! Anyway, are you going to bgdl meeting next sunday??
no location yet (your would be where i would probably go at the end of the day) - it's obvious we need to be a little more proactive to get everyone signed up so we can see where folks are located and what makes sense. If you don't mind, I'd appreciate you joining the NJ group just so we have some cohesion - I'm not running it or trying to tell anyone what to do - just organizing. thanks.
Hi!
Sorry it took so long to write back, but haven't signed in in a while. Yes, I would love to be part of a support group. If you need help, let me know.
Debbie
How have you been??? I am gettin my new wig on Thursday, November 20th, 2008...I am working with Hair Club For Kids, they are great to me and I love my wigs. You gotta put some pics up for us to see!! I would like to see the wig that your mom bought you!!!!!! And you know, if you cant post pics than at least describe the wig...I bet it is beautiful!
thank u so much for your kind words! i honestly want to copy & paste and save your comment so i can re-read it on those days when i'm feeling bummed. hehe seriously. well, i'm glad you have come to terms with this alopecia thing. hopefully one day, i will too! thank you again!
Hi Shannon,
I went to a support group in Manhattan when I was younger, but I don't go anymore. I would love to join your group, but I live in Staten Island, which is over an hour and a half away from you. Maybe on occasion i would be able to come up there, but to drive there regularly seems crazy to me. Good Luck with your group and let me know if I can help in any way!
-Alex
Am in NYC, the Bronx to be exact... i don't know where Suffern is but do what you have to, I'll fit in the best way i can.
I don't know of anyone who would wanna join now but am sure you'll find more people right here in this world....
God Bless!!!!
Hi Shannon, How are you doing? I see that Elizabeth gave you information about the support group in Rochester. I live on Long Island.I was able to go to the meeting in Rochester cause my son is in College there. It is a 7 hour drive for me, so i would not be able to get up there as often. I am planning to come back up that way after all the snow lol! which will be around March. If i come before than i will let you know. let me know how you make out with a support group if i can attend i will thanks for asking!
Hi Shannon!
Greetings from far away in New York! :)
I think it is great that you're interested in starting a support group. I bet there are many people who are looking for a group somewhere between Rochester and NYC. I'm going to give my mom your email address (I saw it in the blog) because she would be the perfect one to ask. If you are ever in our part of the state, we'd love to have you as well!
I read that this is a new diagnosis for you and I understand how scary that can be. If you have any questions or just want to chat, feel free to write back.
Best of luck with EVERYTHING!
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
Shannon's Comments
Comment Wall (29 comments)
You need to be a member of Alopecia World to add comments!
Join Alopecia World
I was wondering if your group in Monroe ever got off the ground? I'm not terribly far from you and have been looking around if there are any groups around.
Djuna
I'm writing to you because I will be having a program at my school "What is Beautiful" and we'll be discussing the many lengths that women/ men have gone to achieve what is beautiful according to society. We will show quick clips and then have a panel consisting of Rutgers students and people with alopecia. (I'm still not too sure if I will be on the panel...im still kinda shy about it) Would be interested in participating or know of anyone that is around the NJ area that would like to participate?
Date: April 21st @9:15pm
Location: Rutgers University, New Brunwsick, NJ 08901
Student Activities Center
Please let me know as soon as you can:)
Thanks
Darlenys
The date sounds pretty good to me!! I'm very excited!! Anyway, are you going to bgdl meeting next sunday??
How old are your girls? I have 2 as well - 5 and 2.5.
Sorry it took so long to write back, but haven't signed in in a while. Yes, I would love to be part of a support group. If you need help, let me know.
Debbie
Well..see ya later!
Taylor D.
<3 lia
I went to a support group in Manhattan when I was younger, but I don't go anymore. I would love to join your group, but I live in Staten Island, which is over an hour and a half away from you. Maybe on occasion i would be able to come up there, but to drive there regularly seems crazy to me. Good Luck with your group and let me know if I can help in any way!
-Alex
I don't know of anyone who would wanna join now but am sure you'll find more people right here in this world....
God Bless!!!!
Am very glad to meet u....I would be more than happy to join ur support group,,,
just give me more information on ur plans.
Greetings from far away in New York! :)
I think it is great that you're interested in starting a support group. I bet there are many people who are looking for a group somewhere between Rochester and NYC. I'm going to give my mom your email address (I saw it in the blog) because she would be the perfect one to ask. If you are ever in our part of the state, we'd love to have you as well!
I read that this is a new diagnosis for you and I understand how scary that can be. If you have any questions or just want to chat, feel free to write back.
Best of luck with EVERYTHING!
Welcome to
Alopecia World
Sign Up
or Sign In
Disclaimer
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.