Susan's Comments

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At 6:02am on August 21, 2009, Tracy and Amanda said…
Hi Susan,
How are you?
tracy
At 8:15pm on August 7, 2009, Sheryl Miller said…
Hi susan ! I like you website ! Sure is nice to see that you are not alone out there with the hairloss issues. It feels like I am alone because I personally dont know anyone who is going through this. Anyway. Do you think the Wellbutrin caused the hairlosss. I am taking it now and have for about a year. My symptoms lean towards per-menopause, but the doctor I just saw yesterday told me "your symptoms dont mean that there is anything wrong." I honestly wanted to slap him up side the head ! My husband has been so supportive with me through all this. I have spent the last 4 years diving myself into a hole and pretty much disassociating myself from friends. I know it isnt healthy, but EVERYWHERE I go I look at every woman's hair I see and it makes me more depressed about mine. Anyway. I truly enjoy all the friends you have on your site and I wish you all the best of luck with your condition and your happiness ! God Bless !!!!
At 6:20am on May 29, 2009, Tawny said…
Hi Susan. My wig is synthetic. So far, I just put it on my head and go! I don't use tape or anything, it stays one really well - even through a bit a of wind and canoeing. I think if i were going to be outside for a long time on a windy day, I might use some kind of adhesive just for added security. It's not hot at all - mine is mono-top, hand-tied, and because it's short I guess, I can honestly feel the breeze on my scalp. Mind you, it hasn't gotten really hot out yet and I haven't been outside under any blazing sun yet, so that remains to be seen. But so far, I have been able to wear the wig for over 12 hours in a day and be perfectly comfortable. I LOVE IT!
At 8:01am on April 23, 2009, kaitlin lavin said…
aw thank you!
At 6:46pm on November 11, 2008, Melody said…
AND.
UNCG is awesome.
What is he thinking about majoring in?
At 6:11pm on November 11, 2008, Melody said…
Thanks!
Well, I've had experience with all of those schools.
My mother lives right off the campus of Western Carolina and my sister goes to Appalachian. She loves it.
Make sure your son has a car if he's going to Western. Civilization is a good 15 minute drive. Have you visited all of these schools?
They are each very unique.
Good luck on the College search.
Maybe we can meet sometime. Hickory is on my way to my mother's and my grandmother's house.

Keep in touch!
At 12:05pm on November 11, 2008, Melody said…
Well, sadly I won't be attending UNCC next year, but your son will probably love it [with the basketball and all].
I've declared an art major, and I'm hoping to transfer to Appalachian for fall of 2009.
I have been seeing Dr. Graham at Alamance Dermatology in Mebane, NC [I am from Burlington and I go home on the weekends]. She has been very interested in the latest research and making sure that I am coping with my alopecia. I would recommend her to anyone. I have been treating my eczema through that office since I was just a child, but with a different doctor. I was lucky to find someone close that knew what she was doing from the start.
I have been getting steroid injections on my scalp once a month since July. I am considering giving it a few more months before discontinuing the treatments. It's helping to grow the hair back, but it is still falling out at a rapid pace.

Similar to your situation, my hair loss began after going on Zoloft for 1.5 months. Also around the same time, I switched birth control from Yasmine to Yaz. At the end of this month, I am going off the Yaz and getting Paraguard [the non-hormonal IUD] to see if it helps spur any regrowth. I have alopecia areata that seems to be heading toward totalis. I'm not sure if this information helps you out with fpb, but I will let you know how my experience with this goes as well.
At 5:08pm on November 7, 2008, Lisa said…
Hi Susan, I am on spironolactone. I just got off of birth control as I wanted to no longer mess with my hormones. My doc seems to think that it is working, I am not so sure. I had a TON of hair and have lost a lot, however no one else can notice yet. So perhaps it is helping. Fingers crossed! Good luck to you!
Lisa
At 7:45pm on November 4, 2008, Celeste Edwards said…
Hey Girlie!

Thanks for the comment on my blog :) That's too funny that you read it to your husband!! But I completely understand! Sometimes I do it too! Other peoples words work better than my own in explaining this craziness to him!

Thanks for your kind words too!! It always feels good to be told you're beautiful!!! :) Right back at ya btw!!

I HAD to laugh!! You too take pictures of yourself while driving!! LMAO!! I thought I was the ONLY one!! We MUST be soul sisters to have SO much in common!!

{{Hugs}}
C
At 5:52pm on July 18, 2008, Danna said…
Hey there Susan. How's it going for you?

We haven't chatted for a while. Hope it's not too hot where you are. ~Danna
At 12:06am on June 24, 2008, L3STYLZ said…
Susan please call us so we may discuss the details we have a few questions and think we may be able to help. 910)6248138/Sam or 253)3349244/Shay
At 4:21pm on June 22, 2008, L3STYLZ said…
Hi Susan. So are you saying you dont suffer from Alopecia? After my mom stopped her Cancer treatments she started taking Wellbutrin as well. We applied a lace wig and started treating her hair with a product we found online and her hair started growing almost 2 inches or more per month.
At 1:33am on June 11, 2008, Danna said…
Okay so your questions are not maddening. I told you that sometimes we would laugh and sometimes just be there to respect one another. So, about this running thing. My wig is human hair. I usually run in a gym only because I suffer from terrible asthma during the spring. The thing is I do 24 hr fitness (the name of the club). No one there gives a care about what I look like, most are too worried about what they look like. I wear a hat, it absorbs the sweat (yuck I know) its all good. Funny thing though with the wig, shower, shampoo what is left, and throw on the wig. Look great. I told you I have some hair growth so it would be too much to just try and be bald. I can tell that you have a great personality. I just hope that I can help you have the confidence to let that part of you shine through this worry that you are going through. Find something to laugh about each day. Whether you chose to shave your head or not is up to you. However, just know that the person you are deep inside should not carry around a burden of feeling ashamed. I am talking as someone who does not want to have half a head of hair. I mean my hair won't all fall out. I have far too little on the top and a little more in the back. I am looking at getting a vacuum wig because I want to go snorkeling sometime. I only ask you for your help with the running because the more people I have in on my fitness journey, the more accountable I can be. Currently I use wig tape and have an Amore wig from Renee of Paris. You can get them on-line.
At 10:55pm on June 9, 2008, Danna said…
Hey, You're gonna help me make three miles right? I'm doing 2.5 at 5.8 MPH, and maybe you can coach me from a distance. I just know that I need all the help I can get as far as getting to the gym. It's tough after a full day of work, I need to drop 10 - 15 lbs to be in the shape I was last summer.

So, I saw what you said about things and well it is such an emotional roller-coaster when you are loosing your hair especially if it was full and thick prior to the start of the hair loss. I just want to really let you know that your feelings are not stupid, nor are they shallow. No one can understand exactly what you are going through unless they have been there. Just remember to always hold your head high, you can always choose which path you will take and not the path of others. What I mean is you can choose to feel ashamed, or you can know that you did nothing to cause your hair loss. Who you are on the inside is the thing that will be remembered by those who matter. Keep smiling and help me keep running 3.0 is the goal.
At 2:17pm on June 8, 2008, Danna said…
Susan, Your sons are great and so are you. I have a son that is almost an an adult and a daughter that is an adult. So, you are asking about going to the beach. Of course I have had to deal with that and I do wear a hat or a swim cap. It's the only thing that can be done if I don't want a burnt head. I started wearing wigs because my daughter played soccer and well my head was always getting burned while I was just being a good mom. I was tired of wearing hats all the time. Just having this web page is a wonderful way for us to know that we are not alone. I felt so ashamed for so long, but that has to end because it could ruin my spirit and my love for life. So, I am thankful for those who have reached out to me including you.

As for you, you don't look old enough to have sons that age. I mean that in every complimentary way that there is. Your son is a weightlifter I see. I hate weight training myself.

My children are almost grown. They still do not respect me (teenagers). A couple of years ago, I was told to lose weight or have some serious health problems I started on a journey. It took me a year and a half to loose nearly 90 pounds. I was asked a lot of questions like was it gastric bypass, was it do to illness, was it do to other things? Well, it was a lot of hard work is what it was. That, and knowing that I could have diabetes, heart trouble, and kidney failure. So, now people talk about me still, but they wonder if I am going through mid-life crises. This includes my own daughter. I think that they need to get a grip and stop gossiping. All in all Susan, I just think that you should know that others who are not sensitive to how traumatic loosing your hair is, will talk and keep on talking. We can't change that. However, it is their own insecurity showing through. You are beautiful, you have a wonderful husband, and two sweet sons. So, you encourage me and I'll do the same for you. If you have a bad day, know that there is a crazy friend in WA who can relate to your feelings and want's to help you smile and be yourself. I wan't to help you have the security to say "Get a Life" to those who gossip even if it's under your breath. Always, Danna
At 3:01pm on June 7, 2008, Danna said…
Susan, when I said that I wanted to get to the core of what makes you happy, I think that we have a lot in common. If those pictures on your spot are your husband, he looks like such a character. Wonderful.
Today, I have to study accounting (yawn). I want to get through the last five classes for my business degree. I go back and forth between feeling ugly and not so ugly/smart and not so smart. I hope to keep reminding myself its not about looks. Now, if I can only convince the rest of the world while reaching outside myself. Keep smiling.
At 1:54am on June 7, 2008, Danna said…
Susan, What can I say to what you have gone through? Except that you need to know that you are beautiful and well dear, I understand that you may not feel that way, and it is difficult to have your hair fall out. I would love to chat though. Get right down to the hart of you and see what makes you smile. I too lost a lot of weight, but am struggling to keep it off. Help, help, help.
At 5:47pm on May 27, 2008, LeslieAnn Butler said…
Hi Susan,
You are lovely! I understand how difficult this is -- I've been through it all. I've had au for 20 years!
I wanted to help support other women, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It's for women and it is a great read, with lots of good info and help. If you want to check it out, go to my page. You can click my web site. Would love to help.
Hugs, LeslieAnn
At 9:32am on May 16, 2008, jennifer said…
i do go to the gym and i just wear my hat and when i go on vacation, i bring both hats and wigs and play it by ear. keep talking and writing people on alopecia world and you will feel better slowly. tgif! :)
At 11:11pm on May 15, 2008, jennifer said…
one more last thought, could it be androgentic alopecia? now sure i have the correct spelling?

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