No more dermotologist appointments for me...that was years ago.
I figured out that they were making heaps of money on me and nothing was ever going to change.Life happens and it will grow when it want to grow.
No magical cure!
Hopefully something will be discovered oneday.
Immune is Immune and some times thyroid can be the cause.
Hormones and SLE Lupus.
Yet by now they have tested for all that.
So...I personally have come to terms.
I don't like it...........................but what's agirl to do!
Mina
Hey Nikki, Sorry it's been a bit, we just got back from a few days at the beach, it was great! The weather was perfect. Thanks for the 411 on the biopsy, it is scary, I wonder if my Dermatologist will let me wait till September to have it, that way I can at least swim until then.
Hey so glad Carnival went so well & you have a great time. Yea for you.
Do you have any other fun things coming up this summer?
Take Care
Hi Nikki, How's it going. I was wondering how the experiment is going? has the idea worked with your bandana's, I hope so. Were getting ready to go to the beach for a few days next week so we have been doing some beach thinking. Lot's of sunblock & bandana's. Take Care & if you have some ideas for me let me know.
I painted these. Painting is one of my favorite mediums to express myself. I've also done some scultping and printmaking. I'm working on some new paintings, and when they're done, i will post them on the site.
I enjoyed the pics on your page, you have a gorgeous family :-)
Great! Go ahead and email me at hodmark@comcast.net and I'll send you the picnic info. You will also be added to the email list. Your parents can be added too if they would like. Heidi ...
Hi Nikki, I am part of the support group in Minnesota and wondered if you and your family are interested in being on our email list for meetings, events. etc. We are having our annual picnic this coming Saturday (7/11) at a goat farm and you and your family/friends are welcome to join us. We have a great time! Let me know if you or your parents have any Q's. Heidi ...
Hi Nikki - that's cool that you're a drummer, too! Do you play a drum set (drum kit), or hand drums? I think bass looks like a lot of fun - good luck with that. Did you see the videos on YouTube of me drumming? If not, search on YT for "dromia stoynoff", and you'll find 7 videos. What I play is very different music.
Hi Nikki,
How are you. I have a daughter with AA. I am teaching her to be strong no matter what. You seem to be dealing with AA very well for your age. Were you recently diagnosed?
Tracy
Having personally experienced Alopecia... you would be an ideal person to educate and help others with hair loss. Had I not had my own experience with Alopecia I would never have the insight that I have today to truly be able to help others.
Hello and welcome, Nikki!
I know how hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and it's available on this site under "Bookshelf." Let me know if there's anything else I can do!
LeslieAnn
Hi Nikki! I'm just joining this site myself and saw your profile! Wow, I can't imagine dealing with this at the age you are! If it helps, it does get easier as a little more time goes on! Stick tight to the true friends you have, find wigs or whatever makes you the most comfortable and, in the end, I'm sure you'll be stronger and more confident than your peers in many ways!
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i'm Essence =)
I figured out that they were making heaps of money on me and nothing was ever going to change.Life happens and it will grow when it want to grow.
No magical cure!
Hopefully something will be discovered oneday.
Immune is Immune and some times thyroid can be the cause.
Hormones and SLE Lupus.
Yet by now they have tested for all that.
So...I personally have come to terms.
I don't like it...........................but what's agirl to do!
Mina
Hey so glad Carnival went so well & you have a great time. Yea for you.
Do you have any other fun things coming up this summer?
Take Care
Hugs
Pam
thank you for the complement!
I painted these. Painting is one of my favorite mediums to express myself. I've also done some scultping and printmaking. I'm working on some new paintings, and when they're done, i will post them on the site.
I enjoyed the pics on your page, you have a gorgeous family :-)
thankyou for the add! be strong and keep smiling! Your beautyfull xx
How are you. I have a daughter with AA. I am teaching her to be strong no matter what. You seem to be dealing with AA very well for your age. Were you recently diagnosed?
Tracy
thanks for the comment!!=]
xoxo
Brittany
Welcome to Alopecia World.
jeffrey
I know how hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and it's available on this site under "Bookshelf." Let me know if there's anything else I can do!
LeslieAnn
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.