Hi Paula,
How are you and Ray?
Tracy

Hi,
You left a message on my page back in Feb. about the song I have on there "I need you now". Sorry to respond back so late but I dont come on often. I have been a member for some time now but everytime i sign on I cry! Like you, I know that God has a purpose and he makes no mistakes. He puts no more on us than we can bare. This I am still learning.

I will keep you and your son in our prayers and you do the same for Jazz and I.

Does your son have a page? Jazzmyn does and she likes to chat with the other kids. It's her chicken noodle soup for the soul :OP.. plus I wont let her have a myspace. lol

Take care

Hi Paula, dropping by to say hi and see how things are going. Have you decided to go to CAP in Aug..Looking forward to meeting you and so many other CAP friends..Is school finished yet?Cindy

Thank You, Paula...

i feel really bad for your son. it most be hard to have alopecia for 6 years! ive only had it for 3 years!

I have never gone to one of their events, but I think Ray can be rest assured it won't be like school..I believe alot of it is kid orientated. My husband is going to be going to that hotel on business in two weeks and sam and i are going with him. He is such a baby about traveling long distances by car alone. We will be staying in the same hotel as the CAP conference. I will scope out the place for ya..HEHEHE...Hope you make it. Keep in touch..

The hotel is Sheraton Society, Philadeplhia, PA 215-238-6000, Aug 7-9..Betsy sent out an emailed brochure of the event. If you want me to foward it to you send me your email address.

Paula, I got the info on the CAP Alopeicapalooza. Did you get it? If not, contact CAP so you can get all the info on it..

CAP stands for Childrens Alopeica Project. I am starting a kids support group in my area under this organization. We will do fun activities for the kids and families and it is means of connecting with other families in this area. CAP is trying to expand their support groups for the kids by having families become group leaders and start meeting. I have a back ground in education and decided to do this. There are no groups out here for kids and when we started going through this I could not find anyone to talk to or anyone for Sam to meet. Now, we will have both. Last month, I organized with another person a lunch in Boston. We had adults and children with AA get together and we had a great time. I hope Ray and Savanna get to meet. Samantha and Savanna have been pen pals for the last few months. We are definitely going to CAP Conference in Aug. Did you decide to book a room?

Hi Paula, Thanks for the message. Sam just had her 7th bay this week and we were in Disney..Needless to say I am in recovery mode now. We see her dr on Tues, but she is doing well. Thanks for asking..I see you have connected with Maria. That is great if you guys meet up sometime. In March, I am starting CAP meeting in Mass.I am really looking forward to it...Anything new by you?

Paula, Yes I would love for savanna and Ray to meet, I think that would be awsome, then maybe they could become penpals too, if he like that kind of stuff...Maybe we could get together sometime this summer when it is nice and warm...I would love it, just to meet someone else who has alopecia, but i will ask savanna and see what she thinks about it....Maria

Hello Paula, First of all I think Ray is a handsome young man, Savanna thinks he is awfully cute too...It is always good to hear when their is a child who has enough courage to show off their beautiful heads. He seems like he is well adjusted and it is good that his older sister treats him good and all her friends accept the way he is. I have a son who is 11yrs old and in 6th grade and all his friends treat Savanna pretty good. No one treats her diffrent, but since she has gotten her first wig back in Sept. she doesnt go anywhere without and she always wears it.

I notice you lived in Dublin Va. I believe that is some what close to us...maybe an hour or two. Maria

In response to your question, the only thing that the ped. derm. has prescribed for Genevieve is Clobex. We haven't tried it though. All the warnings make me too nervous. I don't want to cause a problem for her adrenal system or pituitary glands later down the line because of a few bald spots now. Right now I guess we are just putting it in Gods hands and we will just have to go from there.

Paula, I saw your post on Kimberly's board about CAP. If you book a room at the hotel under the group rate you still have a window of cancellation and you only need to give a cc to hold the room. Something to consider if you want to ensure you get a room at the hotel that is hosting the event. You can contact CAP for the info. Hopefully, we will see you there!Cindy

Thank you Paula for the very nice comments. Ray is one cute kid! I don't think there is anything to worry about there. We have absolutely no problems with Ella having Alopecia and I really credit to the fact that we don't care if she has no hair. She certainly doesn't care that she has no hair and she rarely wears hats. I see that you are talking with Cindy about the Alopeciapalooza. We are planning on going and would love to meet you both!

Paula,
Just saw your pictures. You have a beautiful family and Ray is such a handsome little boy. He looks very happy. How does he do with handling his alopecia?

My dad's name is Ray too!!!!

Hey Bowman Family. I'm so glad you found us. I hope we can swap stories. I hope you have a fabulous day and talk soon.

Brittany and the Bullard Crew

Oh, I got a laugh at his theory on later in life..Do you have the information for the CAP event in Aug? You can contact them for it if not or I think you can find it somewhere on this site. Samantha has a few penpals her age from this site and it has been a great experience for her. I think it may help Ray to find a penpal, maybe a boy his age that he can relate to. Of course Sam is happy to write to hm, but there are many boys his age on here too..