Hi Nicole, I notice that it's a long time since you have been on here but I wanted to talk because I have exactly the she pattern- a few months ago it started at the bottom of my hair above my neck and then it spread up and around my ears. I took the decision to shave it all off because it was looking so thin and hard to cover up with my top hair. Since shaving the hair on top has re grown soft and white and iv shaved it again because it looked so thin and fluffy. I also had a red birth mark where the ophiasis pattern started at the base of my head- not sure if this is a birthmark though because it has not always been there in sure-is this connected go the alopecia? I guess I'm really just wondering where things are at for you now? Has your ever ever re grown? How are you getting on with wigs? Harriet from UK
Hey Nicole,
It's great to hear from you.
I actually now have more than 30 wigs but most are cheap ones...I also buy my wigs from the US too at www.voguewigs.com. I agree it is sooo much cheaper.
Happy Easter
xxx Lisa
Hi Nicole, Whoa, I have the same pattern as you Ophiasis, and I've talked with a few others that have this pattern, they along with me, have a birthmark (stork bite) at the nape of the neck above the hairline, I first noticed on a different site that a woman who had photos of her with hair in back pulled up had same birthmark as me, she said that alot of the women with Ophiasis pattern have commented that they too have same birthmark. I am at that tettering phase right now, if I lose much more I will shave too, just trying to hold on to what I have right now, and feeling rather depressed. I have had several episodes of loss and re-growth over the last several years now, and I'm getting so tired of it, as I'm sure you understand. What kind of wig, or wigs do you wear? Do you buy on line or at a shop? sorry for so many questions but not sure what to do right now or where to go??? How do you deep your wigs on? i bought one several years back but couldn't keep on, kept slipping up :-( You look really nice in your pic. Thanks for any info you can give!!
Christine
Hi Nicole,
Thanks for the add..
I was so encouraged by your posts. My hair is falling out the same way, I am glad to know someone else is going through something similar (not that I am happy you are..you know what I mean though). I wish my hair would just make up its mind. Fall out or grow back. Hope to hear from you soon.
Allie
Thanks for your comment Nicole! Right now I have 2 large spots on the back and one behind my ear which I've just been covering up by wearing a pony tail the past 3 months, it gets annoying. My hair is long and when it's all grown in I LOVE wearing it down and doing stuff to it. It has been falling out since late September and last year was all grown in during may june july and august. I'm not sure if it will start growing in again soon, usually this time of year it does but if I keep losing more I may have to resort to a wig or try to find some partials. I don't want to shave it since there is still so much hair. None of my friends know, and I've kept it hidden very well, that's how much hair is left. How are you doing lately?
Hi Nicole
Welcome to AW
So glad that you have joined us here
If you want to wear a wig- wear one. If it makes you feel better than it is worth it isn't it.
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It's great to hear from you.
I actually now have more than 30 wigs but most are cheap ones...I also buy my wigs from the US too at www.voguewigs.com. I agree it is sooo much cheaper.
Happy Easter
xxx Lisa
Christine
Thanks for your comment on my blog =) Sideburns are the best, right? ;D hehe
Hope your hair will all regrow too!
I'd definitely be glad to help you in any way I can!
Thanks for the add..
I was so encouraged by your posts. My hair is falling out the same way, I am glad to know someone else is going through something similar (not that I am happy you are..you know what I mean though). I wish my hair would just make up its mind. Fall out or grow back. Hope to hear from you soon.
Allie
Welcome to AW
So glad that you have joined us here
If you want to wear a wig- wear one. If it makes you feel better than it is worth it isn't it.
How are you? Just here to say a hello..
How are you doing today?
LeslieAnn
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.