Hi Daria. Nice to hear from you. To answer your question, in early March 2008, I got an email from the Shear Genius producers. It went to the local AA support group, and I was on their email list. I called and sent photos and was asked to be on the show. It was taped at the end of March. I'm is SUCH a different place now! The whole attitude of the show was "let's help these POOR women who are so tragic....." You know what I mean. Now, I'd probably have taken off the wig on the runway and told them I thought I looked better bald!
It was an interesting experience, though, mainly because it was the first time I met so many other women with alopecia.
Hi Daria:
It was just by accident that I googled around tonite and found Alopecia World. I always suspected there were others out there that looked like me and it's so great to see so many happy, full, smiling faces that look like mine looking right back AT me. Your photo gallery is beautiful. Like you, I do have girls as well (2) and they are the light of my life. From 12 to 48....that is the span of time that I've had to get used to alopecia areata which turned into alopecia totalis. Tough road but I'm good with it now.
You look awesome! Keep it up....If you're ever in Arizona...look me up.
L~
Dear Daria, thank you fot these encouraging and beautiful words. You are truly blessed. I've been bald too, and my hair grew back,slowly. For the dutch association of aa patients I look for pictures and stories to publish in our magazine Hoofdzaak. That magazine is all about coping and accepting. I'would love to place a picture of you, is that allright with you? Greetings, Inez Proosten. www.aapv.nl
Daria, thanks for the very kind compliment! You have a great attitude and I am sure that you are an inspiration to others :-) Have yourself a great week beautiful!
Thanks for your comment, Daria. My book hasn't arrived yet but I look forward to reading everything in there! I'm glad you think it turned out well. I'll let you know after I see mine.
Take care!
I live in Camden about 80 miles west of Nashville on the Tennessee River. Where abouts were you looking at a house?
I have been taking predisone for four years now. I started out at 80 mg a day and now I am down to 3 mg a day. I go back to my doctor this Friday in Nashville.
I go out bald all the time. It does not bother me. My husband and kids do not have a problem with it they are just glad that I am still around I guess that's why it does not bother me.
Take Care and Keep Your Head Up!!!
Hey gorgeous! i was just searching for other pretty baLd peopLe in the area & i found your profiLe. i Love your pics...rockin the bandana & grey tank tops[wife beaters] you remind me a Lot of, weLL ME! i Live in baLtimore too, right next to the UMBC campus. i reaLLy enjoyed your bLog post, the most recent one...& i'm gLad you are accepting it & figuring out what's important. i LOVE it!
Hey..thanks for the info. The more people that I am talking to, the more reassuring this sounds. I was nervous about the pain...especially liner! Thanks again!
My wife is bald and beautiful with alopecia universalis.
To me, a lady is often more beautiful bald than with hair, because you can really see her feminine features better when she is bald.
Hi Daria - hope you are well. The pictures on your site are great. Saw that you got your eyebrows tatooed...mine are starting to fall out, oh well, I can't fight it. Wanted to see if you could forward over the contact info for the place you got yours done.
Thanks
Holly
Daria....Hi! I saw you post on someone else's page that you had your eyebrows and liner tattooed. How the heck is the pain on that!??? I am looking at getting them done (eyebrows and top lid eyeliner). I've researched a lot and think I've found someone with a ton of experience to do it. I'm just concerned with the pain....mainly the liner. If you have any info, I would really appreciate it! Thanks!
-Samantha
Daria,
Thanks for emailing and No I have not done any BGDL since last time and YES to Conference ? - this will be my 5th ! Hope this note finds you - I'm having quite a time learning my way around this new web. Hopefully I'm clicking all the right buttons ! Any hints would be appreciated. I'm doing OK as far as the hair goes - having a difficult time detaching from my daughters - they are both grown and I miss them alot. more soon.hugs to you, betsy
Oh, thank you!! I love that you're rockin' the bandana! I hope I'm comfortable enough to do that. Especially this coming summer. This will be my first summer not having enough of my own hair!
Thanks for the info. I went to the mall yesterday, you know the little carts in the middle of the mall? We'll there is one with extensions! So I talked to the guy and he started putting them in. (all my spots are in the back of my head, people walking by were probablly freaking out) We'll I have a hair full of extensions!!!!! They are synthetic also, they clip in, so you have to take them in and out eveyday, it cost be $250.00!! so this will be fun while it lasts!!! I'm excited!
Daria -
Hello there ! Remember me from our Lunch in gaithersburg ? I was with Anna and we-all had our photo taken - I just discovered this website and i know cheryl from conferences - Are you going to Kentucky ? Life is chugging along and I work downtown on week-ends now to keep busy and make money - Love your photo's - I need a tutor !!! Hugs,
betsy
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Anna Mina
It was an interesting experience, though, mainly because it was the first time I met so many other women with alopecia.
All the best,
Mary
I came across your page today and wanted to say hello.
I had the tattos done as well and really think it makes a world of difference.
hope all is well with you.
Jeffrey
It was just by accident that I googled around tonite and found Alopecia World. I always suspected there were others out there that looked like me and it's so great to see so many happy, full, smiling faces that look like mine looking right back AT me. Your photo gallery is beautiful. Like you, I do have girls as well (2) and they are the light of my life. From 12 to 48....that is the span of time that I've had to get used to alopecia areata which turned into alopecia totalis. Tough road but I'm good with it now.
You look awesome! Keep it up....If you're ever in Arizona...look me up.
L~
Full me six beautiful bald than with hair
Take care!
I have been taking predisone for four years now. I started out at 80 mg a day and now I am down to 3 mg a day. I go back to my doctor this Friday in Nashville.
I go out bald all the time. It does not bother me. My husband and kids do not have a problem with it they are just glad that I am still around I guess that's why it does not bother me.
Take Care and Keep Your Head Up!!!
In both a wig, and bald.
My wife is bald and beautiful with alopecia universalis.
To me, a lady is often more beautiful bald than with hair, because you can really see her feminine features better when she is bald.
Thanks
Holly
-Samantha
Thanks for emailing and No I have not done any BGDL since last time and YES to Conference ? - this will be my 5th ! Hope this note finds you - I'm having quite a time learning my way around this new web. Hopefully I'm clicking all the right buttons ! Any hints would be appreciated. I'm doing OK as far as the hair goes - having a difficult time detaching from my daughters - they are both grown and I miss them alot. more soon.hugs to you, betsy
Hello there ! Remember me from our Lunch in gaithersburg ? I was with Anna and we-all had our photo taken - I just discovered this website and i know cheryl from conferences - Are you going to Kentucky ? Life is chugging along and I work downtown on week-ends now to keep busy and make money - Love your photo's - I need a tutor !!! Hugs,
betsy
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.