Hi DesertAngel,

My nickname is Angel also. I have had Alopecia Universalis since I was 5 years old and I am now almost 44. I agree follow your heart & the support you will get from your husband once you tell him will probably do a world of good and hopefully we all can also help be of support for you no matter what. Most all of us still get emotional even those that have had it for a long time. Angel Paula

Hi DesertAngel! You are definitely not alone. My hair loss story started some 15 years ago. There have been ups and downs. For me, there came a day when I was tired of getting the shots and using the ointments and creams twice a day. So I just gave up and let my bald spot in the top of my head grow. Then when I couldn't cover it up any more or wear my famous ponytail, I bought my first wig. That was about 5 years ago. I recently shaved my head. I was tired of having to deal with the long hair on the sides and nothing on top. I feel better about myself right now but each day is a journey. I still wear a wig in public. I am torn between wanting to go gloriously bald one day and wanting to get a lace front wig the next. My only advise to you is don't give up on your hair unless you really want to. Follow your heart. It's ok to be sad, angry, frustrated. Your hair does not define who you are. You will always have the peple that love you.

I know exactly what you mean !!!!!!

I'm feeling a lot better now! I used henna yesterday and it calmed my scalp down. I'm also coming to the realization that this is not a death sentence, not the end of the world, and I am definitely not alone.

Life is good! :-)

I've been having a rough time these past 2 days. I'm having minor flare-ups on my face, back if my neck, on my scalp. They're like pimples, but flatter and they hurt when touched. I know that when they go away, they'll take hair with them. I'm also experiencing a lot of breakage. I can run my hand across my head (like when you brush something out of your hair) and see my broken hair 'rain' down.

I am so very unhappy right now.

My next appointment is in Oct. I was going to ask for another steroid shot but there may be nothing left by then. I don't know how far this scarring will go. Will it cover my whole head? So far its taken the hair from around my edges and the bald spot on my crown keeps getting wider. That will be completely bald soon. I was thinking that if the rest of my hair grows longer, I could cover my crown...

I remember this time last year. I wore my hair in curls...

Hi DesertAngel, I just saw you on chat. I took a peek at your bio. I'm so sorry to hear what you're going through. You are going to find so much support here! This site has been a life saver for me in coming to grips with son having this.

You're welcome.
I know you will really enjoy it here especially if you get my humor

Welcome Again,

Jeff

Hello DesertAngel, I feel you@saying it out loud and it being reality. Although I've accepted Alopecia a long time ago, there are things that I keep inside, hoping that they go away and I won't have to say a word to anyone...if I do, it becomes reality and may never go away. Be good to yourself, the support you'll get from your husband will do you good.

Welcome.

Roger.

Hello Angel,

Welcome to Alopecia World.
I don't think you are a terrible wife. I think you are in shock.
I know one thing, you will find loads of support here.
Cry me a river when you are ready.

Jeff

Hello Angel,
How are you today? I wanted to say hello and welcome you. I've had universalis for many years. How long have you had scarring alopecia?
LeslieAnn

Hi, DesertAngel. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder