My daughter just saw Megan´s photos and she said she is so beautiful, she felts better about herself because she can be as beautiful as Megan.
I´m so glad you add photos, thankyou
Well, what ever is working it is exciting. Samantha's hair started aggressively falling out around this time last year. Dec 1st will mark her one year anniversary of wearing a wig. I think I will cry. By the end of Jan it was all gone and by March her lashes and brows were gone. She never had regrowth till now so I don't know what to expect. She is taking Biotin, Aloe Vera juice and most recently the cod liver oil. How much do you give? Sam takes 2tbs a day. She has a layer of hair about 60% of her scalp and some thicker patches. Her brows seem to start to come in and then a few days later are gone. She currently has a few hairs on one eye. Some come in dark and some light. I am waiting to see some lashes. We went to the doctor on Wed because her scalp was flaking and she got scabs from picking. It is almost gone now. We think it was a shampoo I started using. Like I said the doctor hadn't seen the regrowth and was thrilled to see her. She feels strongly that Sam will have a positive outcome in the end and we are doing everything right. You should check out hatswithhair. Samantha loves them. It is headbands with hair sewn into them. www.hatswithair.com..
Cindy
Hi Megan, I was reading on another posters wall about the regrowth news. I am so happy to hear that. Do you think it is the treatment? And, I was glad to read that I am not the only mom turning on light during sleeping hours looking at eyebrows and hair fuzz...I took Sam to the doctor last week and the doctors were thrilled to see her regrowth. She was just getting fuzz when they saw her last...cindy
Hi Megan, Mia is about 95% bald know..I will post new pics soon.Mia has school pics in 2weeks last year she wore a bandanna this year she will do what she pleases. As for Paige the fuzz is a good sign. Mia had fuzz befoe her regrowth last time..Mia also had very light eyebrows and when they did regrow her hair and eyebrows were much darker..Keep feeling positive..hopefully the positive energy will show positive results. Good luck hope to speak with you soon.
Maria
You'd asked if Jessica keeps her wigs on. She loves the ones with headbands. She always wears them. At first she thought she could only wear the black one if she was wearing black and the read head with something yellow, orange or red. I couldn't figure this out until one day she asked me if her hair matched her outfit. To CUTE! Try www.headcovers.com! It was silly hat day at her school two days ago and she decided that because she gets to wear a hat everyday it was only fair for her to go without on hat day. She had me put some little clips into the little whisps of hair she has left and off she went. She's amazing!! Keep in touch! Kim (Jessica's mom)
Hi Megan, I mostly wore ball caps and "bucket" style hats. I think that the hats can certainly overwhelm little heads/faces. Have you thought about maybe checking out the headscarves that come in kids sizes? Check out: http://www.4women.com the owner, Susan has a great collection of headscarves that can be wore lots of different ways and they come in kids sizes too! Lots of pretty fabrics and are a nice alternative to hats.
If I see anything else that might be good I'll drop you a line :-)
Thank you for your words. Your daughter is beautiful. You're right, there are some amazing people on this site and there's a lot of knowledge and experience being shared.
Megan is a doll! You mentioned this was her second bout of hair loss. Did she have full regrowth? Jessica has 3 wigs. She liked wearing them last winter but when the weather got warm she didn't like wearing much of anything on her head. We've been putting flowers and butterfly tatoos on her bigger bald spots. She likes scarves and hats. She really likes the wigs that are sewn into headbands, like the one in the photo. And she loves crochet caps. She clips flowers onto them that match her outfits. We like the generic colors - black, white, etc... She really has been doing well with it. She thinks it really funny when older kids tell her that she isn't supposed to wear hats in school and she gets to tell them that she can cuz she's special - then she just pulls her hat off and shows them why! She also thinks it's funny to tell people it's contagious. She's such an easy going kid. I think she's lucky that way.
Sorry about the name mix up to muc confusion at once but the post was intended for u..Sorry to hear the treatment isnt going well...we started anthralin 10 days ago and Mia isnt having it...Sorry to hear about school, there are rotten children everywhere...I also went to a chinese med dr. in the past he gave me something for Mia to drink.but that never worked out it tasted terrible..she is so picky about things she eats/drinks..Good luck with what ever it is you decide for treatment, because at this point I think we all need luck because none of us know what to do to help the situation..talk to u soon.
Maria
I can completely understand what you are feeling as Amber is going through the same thing. She has a little crop as well and is not shedding for the second time. She is also turning five in Nov so we are on exactly the same boat. Maybe not a boat that we would like to be on but I guess we can take comfort in knowing that we are not alone in this journey.
karem
At 11:07pm on September 25, 2008, Zoe Dusting said…
Hi Megan!
I get cortisone injections when my hair sheds. I'm actually still getting them once a month, even though my hair has stopped falling out. I think that they helped for me, although I know that it doesn't always help for everyone. When I first got them, they were really traumatizing for me and they were really painful. But now, i hardly notice them and I'm totally comfortable going in to get them. Although it isn't much fun, it only lasts a few minutes! Anyways let me know if you have any more questions. I'd be happy to answer them :)
She is just precious. I think that it is harder on us as parents than the kids. Espeically with her age because she can't rationalize it all in her brain. (which could be a good thing) My little girl is getting some regrowth back, but not much. She wears a vacuum sealed wig made of real hair. She uses a little eyeliner and has bangs. So no body really doesn't think about it anymore. I have boys and hormones coming in the picture now. I am not looking forward to the drama with that! Take care and keep me posted on how your little girl is doing. I hope school is going good for her. Kids can be so cruel.
Terri
Hi Megan..I have not heard of the med your doctor is giving you. I can't believe it cost that much $$$$. Are you going to use all 3 the things together ? Samantha is continuing to do well. No big changes yet...I hope things work out for you daughter..Keep me posted. She is adorable not matter what!
Hello:
My daughter who is 12 has had AU for 3 years now. She is in the 7th grade. This is a very trying time for us. I would love to chat with you some time. I hope Megan is doing good. She is just precious.
Terri
Hi Megan, Good luck with he cod liver...Does paige want to be a mermaid or ariel? Maybe u can get her to wear a wig? Mia has changed her mind several times about what she wants to be...supposedly this week the school said they would show the dvd on alopecia to all grades...I hope it makes a diffrence I will keep u posted on how it goes.TAlk to you soon.
Maria
HI MEGAN, How was ballet for Paige? Mia also started this week. Ballet went much better than school. The only issue with ballet was that a brat that came in for the second class was witing inthe hall she was about 9yrs old was laughing and told her mom look theres a bald girl in that class..It took all my energy to not say something because it was the first day and there were about 15 parents there..the mother just laughed didnt even tell her daughter to be quiet..I saw you new pic..the losing it pic reminds me of how mia lost her hair..I will post new pic so that u can see how much she lost..At least part of your post made me smile, the part about the cod liver oil soaunds just like me as soon as i hear something I aso go out to try it....Do u think paige will take the cod liver oil?Hope to speak with u soon.
Maria
Hello Megan, I was glad to hear from you, your daughter too is so very cute, what beautiful hair she use to have, I know how it feels to watch their hair fall out and there is nothing you can do about it. savanna had blonde curly hair almost look like your lil girl. She has adjusted well to her alopecia but she has had several years to adjust. She lost all her hair within months and has never grew anything back. She was taking Cingular for about 6months and her hair started growing back and she got her eyebrows and eyelashes back, I dont know if it is from the medicine or not but that has been the only time she has any hair growth and since she has been taken off of it her hair fell out again.
I have noticed white fuzzy hair all over hair and a small patch of hair in the back. I dont do any treatments for her only because I know there is no cure for it and I refuse to try anything that will cause any kind of discomfort or pain. I have seriously consider trying treatment but I havent yet.
Savanna loves her hats, that is her comfort zone, she has so many I couldnt even begin to count them. She did not wear her wig to school today I was a lil disappointed and was hoping she would, but I refuse to make her wear it. I strongly believe picking your battles and this is one i assume to let her win. This is her condition, not mine and she needs to deal with the way she feels most comfortable, I am just her side kick...( I am here to stand next to her and back her up) because she is my HERO!!!! Maria
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I´m so glad you add photos, thankyou
Cindy
Maria
You'd asked if Jessica keeps her wigs on. She loves the ones with headbands. She always wears them. At first she thought she could only wear the black one if she was wearing black and the read head with something yellow, orange or red. I couldn't figure this out until one day she asked me if her hair matched her outfit. To CUTE! Try www.headcovers.com! It was silly hat day at her school two days ago and she decided that because she gets to wear a hat everyday it was only fair for her to go without on hat day. She had me put some little clips into the little whisps of hair she has left and off she went. She's amazing!! Keep in touch! Kim (Jessica's mom)
If I see anything else that might be good I'll drop you a line :-)
Maria
Maria
I can completely understand what you are feeling as Amber is going through the same thing. She has a little crop as well and is not shedding for the second time. She is also turning five in Nov so we are on exactly the same boat. Maybe not a boat that we would like to be on but I guess we can take comfort in knowing that we are not alone in this journey.
karem
I get cortisone injections when my hair sheds. I'm actually still getting them once a month, even though my hair has stopped falling out. I think that they helped for me, although I know that it doesn't always help for everyone. When I first got them, they were really traumatizing for me and they were really painful. But now, i hardly notice them and I'm totally comfortable going in to get them. Although it isn't much fun, it only lasts a few minutes! Anyways let me know if you have any more questions. I'd be happy to answer them :)
Terri
My daughter who is 12 has had AU for 3 years now. She is in the 7th grade. This is a very trying time for us. I would love to chat with you some time. I hope Megan is doing good. She is just precious.
Terri
Maria
Maria
I have noticed white fuzzy hair all over hair and a small patch of hair in the back. I dont do any treatments for her only because I know there is no cure for it and I refuse to try anything that will cause any kind of discomfort or pain. I have seriously consider trying treatment but I havent yet.
Savanna loves her hats, that is her comfort zone, she has so many I couldnt even begin to count them. She did not wear her wig to school today I was a lil disappointed and was hoping she would, but I refuse to make her wear it. I strongly believe picking your battles and this is one i assume to let her win. This is her condition, not mine and she needs to deal with the way she feels most comfortable, I am just her side kick...( I am here to stand next to her and back her up) because she is my HERO!!!! Maria
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.